Megan's Heart for Life

After months in hospital, Utah girl gets Christmas wish

2012-01-14T11:41:00.000-08:00

The Salt Lake Tribune

First published Dec 23 2011 12:26PM Updated Dec 24, 2011 12:13PM

Here’s what Megan Birk doesn’t have anymore:

The heart she was born with; the new model is nicknamed Thumper. Most of her colon. Her spleen, her appendix, part of her stomach and her pancreas.

Megan dreams of Red Lobster — shrimp scampi, snow crab, cheese biscuits — because she hasn’t regularly eaten solid food since spring. When her mom, Paula Birk, recently brought Greek takeout into Primary Children’s Medical Center, its spicy scent wafting toward her wistful daughter, Paula realized she should leave the room. Sometimes Megan asks to smell her food.

The teenager has spent years of her life in hospitals, defying doctors’ expectations after her premature birth, then a bout with leukemia, and again after cancer treatment damaged her heart. Last spring, she was leaping and turning in a dance performance at Tuacahn High School for the Performing Arts near St. George.

Days later she was strapped to a gurney, being flown to Primary Children’s as new tumors bulged from her side.

Once again, she wasn’t just sick, but deadly sick.

"I knew what would happen," said Megan, 18. "I thought I’d have to go through all that cancer stuff again. I got really scared."

For most of her senior year, Megan has been at Primary Children’s with her mother sleeping next to her almost every night. When her favorite teacher, her choir director, takes attendance at Tuacahn, he always asks whether Megan’s back. Not yet.As the sopranos warmed up in class in December, Megan lay in the dark in Salt Lake City, with Christmas lights draped over the bags of fluids on a pole helping to keep her alive.

"If she was going to die, she would have been dead this time," Paula said. "She wants to do her homework."More than 150 children will be at Primary Children’s this Christmas, where Santa will visit them as they sleep surrounded by blinking monitors and intravenous tubes. As the holidays approached, Paula hoped Megan would not be one of them.

This is, after all, a girl who was born 10 weeks early weighing about 1.5 pounds, the smaller of identical twins. Baby Megan caught pneumonia when she was about four days old and doctors told her mom she would never go home. Three years later, leukemia assaulted her and doctors once again predicted she might not survive. The treatment hurt her heart, leading to a transplant when Megan was 15.

For teenagers like Megan who receive a heart transplant, over half are alive 12 to 15 years afterwards. She was among the survivors, dancing at her new school, swimming in the pool and getting ice cream with her family. Her future was filled with possibilities.

And then one day last spring, Megan felt so nauseous at school she couldn’t eat lunch. When she couldn’t keep down food, water or even her heart medication, her brother, Lamar, took her to the emergency room in St. George. Doctors saw a large mass in her abdomen and rushed her to Primary Children’s.

A biopsy identified a Desmoid tumor. Although considered benign, it invades, spreading like octopus arms into tissue. One of the edges of Megan’s tumor was next to vessels that feed most of the intestines and stomach. After surgery, tumor cells likely remain — but they are too close to the major vessels for surgeons to remove them.The cause of the tumor, which can recur, remains unknown.

"I always tell Megan and Paula too, ‘You won the bad lottery,’ " said Holly Spraker, Megan’s oncologist. "It’s not fair to even get one thing, but she’s had multiple cancers now and multiple problems."

The tumor invaded part of her pancreas, some of which had to be removed. Because the pancreas didn’t heal properly, the teen had problems eating solid food over the summer. She was initially in the hospital for about three months.

The suffering can still take Megan by surprise. Chemotherapy exhausted her and made her throw up. She cried because she got so scared.

"I gave up once," Megan remembered, when she was waiting for her heart. She gave up again when she first heard about the tumor.

"But then I say to myself I can’t give up because if I do — it won’t work," she said. "Nothing will help."The cause of the tumor, which can recur, remains unknown.

The suffering can still take Megan by surprise. Chemotherapy exhausted her and made her throw up. She cried because she got so scared.

"I gave up once," Megan remembered, when she was waiting for her heart. She gave up again when she first heard about the tumor.

"But then I say to myself I can’t give up because if I do — it won’t work," she said. "Nothing will help."As for her own future, "I either want to be a heart doctor or a cancer doctor for little babies," Megan said from her St. George home, acknowledging her repeated illnesses may make performing surgery difficult."If I can keep my hand steady, then I can probably do it, but it will take a lot of work," she said.

Megan’s identical twin, Jackie, is healthy but figures her sister is a lot stronger than she is.

"I always tell my mom, ‘Why can’t I take something? Why can’t I take her illness and not have her suffer for such a long time?’ "

In November, Megan was back in the hospital for doctors to cut out a cyst that had grown on her pancreas. They also removed a connection that had developed between her pancreas and her colon, allowing the potential spread of bacteria, taking out more of both organs in the process.

The planned two-week stay turned into a downward spiral of emergencies. Internal bleeding led to emergency surgery and more removal of Megan’s colon. She was briefly on a ventilator.

Her mom began to worry about a funeral, as she had many times before.

"You go through the whole procedure — will I do what she wants?" Paula thought. "I lay in bed and I think, ‘What colors?’ ‘Who’s going to help me?’ "

But once again, as Christmas approached, Megan began to recover.During the latest hospital stay, Paula felt it was finally the right time to contact the family who gave Megan her precious Thumper. They sent a letter this month.

"Whoever gave my daughter the chance to live needs to know she takes care of their heart," she said. "She doesn’t take advantage of it."Small in stature with a high voice that suggests she is younger than her age, Megan has the maturity to understand the impact her cascade of illnesses has had on her family, particularly her mom. Divorced from their dad, who lives in Germany, Paula has raised the teen, her three brothers and one sister essentially on her own.

"I always tell her I’m sorry for everything because it’s a lot of money," Megan said.

But her mother sees what her daughter cannot.

"I live with an angel," Paula says. "I’m a very lucky woman."

On Friday, Megan earned her wings. She had the strength to walk up 24 hospital stairs and was healthy enough to eat steak and salmon.

With her mom and sister, she drove home to St. George to join her brother Lamar and her new puppy, a white Maltese, for Christmas.

She’ll be back soon for more tests. But for now, Megan’s proved — once again — she’s ready to fly.

Whats happened the last Week....

2011-09-14T19:58:00.000-07:00

So Last Friday I got my port plased and Dr. Black got rid of my wort so I have threre Stiches.. OUCH..... And I have to start Chemo on Friday.

** Update Soon**

HAPPY BRITHDAY THUMPER (Heart)

2011-09-05T10:46:00.001-07:00

3 Years Old THUMPER on Friday September 2, 2011.

**Put Up Pictures Of Party When I Can**

‘Perfect’ Biopsy! (Deep exhale…….!)

2011-09-05T10:39:00.000-07:00

My Biopsy was Friday on my Thumpers Birthday. they make a small incision in my Leg, and run a catheter down my vessel into Thumper's heart. They retrieve a tissue sample from my right ventricle of her heart……. or several pieces. They measure the pressures in My heart, and approximate the pressures in the chambers they can’t truly access….. the left side. Then the biopsy tissue is sent to the pathologist, And they called us 7 hours later after the Biopsy and the results are perfect they are 0 - 1 - 1 which is better than last time cause, last time they were 1- 2 - 2, so that's good.

Me In The News...

2011-08-30T11:52:00.000-07:00

**LINK**

"Teen tackles chemo, again"

http://www.thespectrum.com/article/20110829/NEWS01/108290320

Was In The Hospitial Last Night

2011-08-30T11:16:00.000-07:00

So Yesterday I got really sick , I was throwing up all day Friday, Saturday, and sun day. So we called cardiology, and they told my mom to take me to See doctor Niggard, and he admitted me to the Pediatrics in the hospital, and I had to get Fluids, Potassium, and Glucose. But, today i Fell allot better.

*** UPDATE SOON***

The Only Way From Here Is To Go Up

2011-08-21T16:29:00.000-07:00

On May 17th at school, I was starting to get sick to my Stamoach. I couldn't keep my Anti- Rejection Medicane Down, cause I was Throwing Up. By wednesday I was really sick, and we went to the ER in St.George, they were going to send me Home casue they thought I had a Stamach Virious,But my mom kept elling them there was something worng with me , and then finally a doctor did a aultra- sound, and found a llare mass in my abodommen. They told my Mom, and then she statred freaking out and she told them to call Primarys , then they Life Flitted up to Primary's Children's Medical Center that night.

Thats when Dr.Nicholas met me , I really don't remember cause I was So sick, So all these docotor came in and out eplaining that it had to be taking out, the surgean

Dr.Rollins wanted to go in and try to take the whole tumor out,but with all my history, the onocolgists wanted to just Biopsey it. I was still too sick to know what was going on and I hurt so bad, so they added me onto surgrrey for the 19th. Dr.Rollins led the surgrey team,began to do a byopsy, when he got in my tummy it looked like he could get the whole thing out so he cutted a bigger

spot, thats when he found that it was attached to my stamoch, my colun, and my paceruase,so he took the biopsy,then we had to wait for the patholagy report. It was a long wait and it took till the 25 of may to find out what it was and what they could do.

On the 26th of may in the evening theytook me into surgrey and found not one mass , but two and they had to take part of my stomach, part pancerous, and pat of my choln

with the larger mass, and the smaller tumor the had too take part of my jajunmen. They put me in the PICU for 1 day and then the next day back to the

surgical unit to my favorite nurses and doctors. Dr.Rollins and Dr.Whipple,Dr.Evritt made extra sure I was taken care and nothing wrong could go again. And then I couldn't eat, and they placed alot of PICC LInes cause mine keept getting Infected. And my sweet mom and Brother stayed with me I was on TPN and Lippids for about 2 weeks cause my stamach coulndn't handdle food and they put in a NJ tube. Dr.Rollins came in every day and explained every thing thats going wrong with me to me and my mom. they couldn't get all the cells of the timor so the oncolagist came in and explained what they could do. With these dismoid masses sometimes surgrey can make them come back faster, sometime chemo can slow them down, but I guess they well always come back.

They wanted to start me on Chemo as soon as possible, but they wanted me to frist feel better from the surgey, wich didn't happen really fast. they wanted to start me befor I left but i was still to siick, I would better then worse, I could eat ice Chips the i got sick and had pancretitis. So I got to finallyy go home with the NJ tube, PICC LInee and a Cook Drain in my Pancerus on friday the 17th of june , I couldn't real well my mom was afraid to take me home, but with insurance they wouldn't pay for any longer in thee hospitial and the cook drain. I couldn't walk very good and couln't get out of bed alone. we had a hospitial ed in the front room, my mom and brother , and sister had to help me.

I got stronger every day and was on sosyn antibiotic and tube feedings. By wednesday the 22nd, I was starting to feel strong enogh to walk to the bathroom but still needed help to get of the tolit. I went to doctor nygard in ST'George on thursday but by then i wasn't feeling good. but by sunday 26 of june we were life flited back up to salt lake. By this time insted of the 2 bacterias i had , i know had 5. So I went to the PICU and had to go to the huntsmen center for some test to place a stent in my pacaraus.I ended back on the 3rd floor but in the green hall (the Medical Unit) and my mom fraked out again, cause I was in the wrog unit, so the but me in the treatment room onn the surical floor. I was reallt sick I still couldn't eat, I was on so much medication, a doctor would come in and said i could eat and then DR.Rollins came in and told me I couldn't. They still didn't want me to start chemo. I finaly got moved across the hall after 2 weeks to a real room. Jacqueline, Lamar and Micheal helped my mom the whole time.

I then Was Moved to the Rahab Floor (Nero Science Trama Unit), Cause I had to do PT, OT, and Speech Threapy. And I was There For About 3 Weeks.

And I got Stronger and Stronger, I was moved back up to The Surgical Floor. And Then on 8/5/11 on my Blog I Posted:

So.... I'am Still in the Hospitial, and today I had Speech Thearapy, it was Fun, and then I was bored so i Decided to clean my Room, and then i went acrossed the hall andwent and saw my Heart Buddy Kadience, cause she was admited here yesterday at about 5p.m., but she doing good know... :)

Bad News....

So two days, ago my surgrey doctor came in and told me i could eat,cause i couldn't eat for 2 mounths,so i ate for the first time and it was really wired. And then about a hour ago my nurse came in and told me I Couldn't eat.... So Know I'm on clear liquids.

________________________________________________________________________________

So I Got to Go Home on Augest 8th ,I was so happy.

Woke Up....

2011-08-06T09:52:00.001-07:00

So I woke up about 9:30, and I took my pill and then i Throw up it was awful, But I Still get to go home, so that's good. Im just waiting for my mom to get here, cause she driving up from ST.George.
*** Update Again Soon**

Zzzzz

2011-08-05T21:10:00.000-07:00

Going to Bed Packed Some Stuff..
Good night

I Get to go home Tomorrow...

2011-08-05T19:45:00.000-07:00

So..... tonight I'm still in the hospital , wacthing greys anatomy, and going to start backing my stuff, cause I'm Board... I well Blog Again after I'm Done and I Just took my Meds.

My Hospitial Activitey

2011-08-05T17:59:00.000-07:00

So about an Half of an hour ago i went down and did Tye dye with my hospital Buddy's and we had a party it was alot of friends it was awesome, with Kendra and MiaBella and Cassidy. It was awesome.
**Update Soon**

Megans Video

2011-08-05T12:30:00.001-07:00

A Video of me In the Hospitial at Primary Childrens they filmed.
****** HERE"S THE LINK*******

http://marknelsonprodutions.com/clients/youngreviews/index.html

Bad News....

2011-08-05T12:23:00.000-07:00

So two days, ago my surgrey doctor came in and told me i could eat,cause i couldn't eat for 2 mounths,so i ate for the first time and it was really wired. And then about a hour ago my nurse came in and told me I Couldn't eat.... So Know I'm on clear liquids.

Still Here...........

2011-08-05T12:19:00.000-07:00

I Been In The Hospitial All summer

2011-07-31T13:07:00.002-07:00

On May 24, 2011, I was Life Flitted to Primary Children's. and I was Diagnosed with Tumors In my tummy. And they did Surgery and took most of them out,but one of them are still there and i need to be on Chemo For rest of my life........ And I have been in the Hospital for 2 Months.
And I was diagnosed with Desmoid Tumors, and they don't go away, They are like cancer but, there not so, it's really hard fro the Doctors.

My Life Righy know, And aa new School

2010-12-21T11:09:00.000-08:00

Well I known i haven't blogged In a very long time. well in my life know It's pretty good I had my doctors appointment up at primary about a week ago and ever thing is okay with Thumper which is a good thing. I 'am in a new school I go to a private school it's a school for the Performing Arts. Cause I sing and Dance. Well i well come back and blog i have to go eat. Bye

I Went ANd Saw Nick Jonas And The Addminastration Concert

2010-03-07T16:06:00.000-08:00

I won this ticket to this band it is Called Nick Jonas and The Administration. His band The Administration was part of the Jonas Brothers.

Sorry I haven't Blogged For A Very Long Time

2010-03-07T16:01:00.000-08:00

Sorry i haven't blogged for a long time i have been so busy with school and Driver's ED yes Driver's Ed. I went to this 80's dance with this boy and he was my mom's bosses son and his name was Casey. I Had Blast cause he could drive and we went out to dinner, and we went to the the Dance it was allot of fun I well blog soon again and a couple weeks ago i was really sick but know I'm better.

Went And Saw Honor Society

2009-11-29T16:50:00.000-08:00

Well it was on October 24 , 2009 on A Saturday. And it was in Murry, Utah near Salt Lake City at the Murry Theater. And well so me and my Mom left that day and started to drive up to the concert and so it took us a little while to get there and the Concert was sapost to start at 7:00pm but the doors opened at 6:30 and well we got there at like 8:00pm and we were sad cause we thought that we missed the Concert but we didn't miss it which was a good thing and so then during the concert they sang a song called " See You In The Dark" and they do a Dance to that song and I did that dance and it was so much fun. And then at the end of the concert everyone got to meet them and take a picture with them and a singed poster of them and well and during the concert they had a spacial guest and her name was Esmee Denters. It was really cool and then after the concert you could meet them and stuff but you had to buy a Ticket to it and i didn't have a ticket and my mom Told them That I had a Heart Transplant and I wanted to see these guys so bad and they just said yes to every thing so i got too meet them and stuff it was amazing and I told one of the singers in the band that I had a Heart Transplant and I Got two singed Guitar picks which was amazing and i got to hug them so right after i got in the car and changed my shirt and putted my shirt that they gave me hug with and saved it and I'm going to put it in a frame. It was So Amazing the best time in my Life. :)

This Is What Has Been Going On For Last Couple Of Week's

2009-11-29T16:47:00.000-08:00

Well I went to My Heart Cath and It Was Perfect :) and I Went to my Regular Check Up and Everthing Was Good too the only thing was that they had to change my Thiod Medication and my Prograf.

I Went To HOMECOMING.

2009-10-18T17:56:00.001-07:00

Well I had two Hearts Caths and they were Both really good. Anyways And I'am still in High School. And I Went to Home Coming. And I went with a guy name Tynan, and he is 17 Years old, and we went out to Dinner at Olive Gardon and I had the 5 chesse zitey. I have been doing really good.

All About My Jonas Brothers Concert In Las Vegas, Nevada

2009-09-11T21:36:00.000-07:00

Welll first we left Saint George to head to Las Vegas that morning, and we drove probaley 2 hours and a half maybe, oh and also Jewels was with us too so that was really cool. Any ways so we got to the Hotel finally wich was the New Orleans Hotel it was relly pretty. So we got our room and it was a nice room too but it did not have good Tv cahnnells that was kind of anaying. Well so my brother Lamar and my twin sis Jacqueline went Bowling but I was too tired so was Jewels. And the next morning was the day of the the Concert and well lamar, Jacqueline , my Mom and Jewels went swimming I didn't want to go plus I can't be in the Sun and secound I can't swim in pulplic pools, but threid is be cause I wanted to get ready for the concert even thow it did'nt start untill like six at night plus I wanted to be the first to be ready. Aly ways so the came back and was really shoced that I was all ready, and then every one got ready. So we had Pizza for lunch it was really good, and then we started to heead to the Jonas Brothers Concert and VIPSound Check Party with the Jonas Brothers Me and My Twin Sister Got too go because we had speal tickets and we got to even hug them too. And so theis is a Pacage thing were you get a gieft bag from them and them, and then you get to see them have sound check were the get ready befor the concert. And sometimes you get too ask them Questions and stuff.

any was that was at 4:00 to like 5:oo. And then we left And we went to find my mom me and Jacqueline my twin. And then we told her all about it, andshe was so happy that I got to do that and L know my mommy loves me so much. And then that night was the concert. So we went to the Concrt and I guess it wasent allowed to Rec. and so this worker told me to come with him and was cryiing and telling my sister to come with me but she said"No No No No" and i said "Please come with me" And she wouldn't come with me, so I went with the manager guy and we left the concert out of the Venu and we went to this desk and he said to this lady that I was recording and she felt so bad for me cause I was crying and I kept saying I didn't know I'am so sorry. And she was like oh my gosh you scared this girl to deth, and so then we went back to the concert and the way that we had to go was throw Backstage so that was so cool. but ya anyways that was a cool the concert cause Honor Society played and Jordin Sparks played with The Jonas Brothers, and it was so Heart warming cause Jordin Sparks while singing she touch his chick, Joe Jonas it was Amazing. And We finised the concert and we went to back to Hotel and Anyways it was Amazing.

I Well Blog Again Soon

2009-07-29T22:42:00.000-07:00

Anyways so like I said Disneyland and it alot of Fun. And know I well Write back after I Go See The Jonas Brother's again on August 1st in Las Vegas, Oh and I Have new News. And Well here,

Event: Jonas Brothers Tickets Venue: Mandalay Bay Resort Event Center, Las Vegas, NV Date: 08-01-2009 07:00 PM PST Quantity: 2 Section: FLOOR 9 - JONAS SOUND CHECK PARTY Row: C - VIP! Comments: VIP PACKAGE INCLUDES EARLY ADMISSION INTO VENUE, SOUND CHECK PARTY WITH JONAS BROTHERS, VIP PARKING, JONAS BROTHERS GIFT, VIP LAMINATE, PLUS MORE!!!

And that is so cool. I well Blog Later and I can't Wait to see the Jonas Brothers :)

I Got To Go Too Disneyland

2009-07-29T22:31:00.000-07:00

Well I went to Disney Land. It was my first time, Cause I onley have been to Disney World. Cause that was my Make A Wish. Anyways so I went to Disneyland and I went too most of the rides and It was my First time going on a Roller Coster that go's up side down and at first i just was very scared so I just got in and said too my self "It is always fun trying somthing new".Well so i went on it and was so much Fun. Any way's it was so much fun. And well that's that.

Pictures Of The Jonas Brother Cocert I Went Too

2009-07-13T18:55:00.000-07:00

I Went And Saw The JONAS BROTHERS 4th Of July Stadium Of Fire

2009-07-13T17:20:00.000-07:00

Well we all got dressed and Ready at the Hotel in Salt Lake City It turns out that it didn't start until 8. At one point I waited around to see the boys walk from their meet and greet room to backstage, And when I went Up too see them walk By I was not even close to the gate and Then my mom Said to these boys that I Had a HEART Transplant and They said Oh My gosh you did and I'm like yep and then they me get up right to the gate and said Thank You so many Times. since there really wasn't anything happening we waited and waited but I guess The Jonas Brothers was Never coming so then I see Big Rob walked through and The Jonas Brothers Father and Big Rob is There Body Grad and when they do come out too see there Fans they are always with him, so they didn't come but I got too see Big Rob and There Dad with was awesome, but I do know that They sure love their fans.

Then this political guy comes out on stage and before I know it little kids in red white and blue dance costumes are dancing around with disks. It was so cool and neat. And then people were throwing and playing with fire and running all over the place. And THEN these people in hats came out singing a song from the music man.It was the strangest thing I've ever seen. Oh, and then jets flew over the stadium. The stadium was so awesome looking with Red, White and Blue stars and lights. It turns out that the whole event was broadcast for over 1,000 military bases. I thought that was really wonderful :)

So after more dancing from the little kids, SHeDAISY, the opening band came out. NO ONE stood up for them. It was crazy. Actually, three girls in about... 3rd row all the way over were dancing around for half the songs, but I think I was the only one how wanted to stand up but my twin sister didn't want too so I was too Scared but my sweet Jewels was Jumping up and down it so adorable. Anyway, after they played four songs and left the stage, the strange political man came back on stage and made us all pray and then sing some patriotic songs to the giant flag that they put up it was really wired cause last Year when I went too the Stadium of Fire For Miley Cyrus With my Mom And Twin Sister Jacqueline we didn't do any thing like that we just sang the Nathanial Athum.

Then right before the boys came out, girls rushed to the stage! And I asked my Mom what was going on and she said the JONAS BROTHERS are Coming. And I ran up there and everyone was Pushing but I was Small enough to squeezed be tween kids so I Finally got to the Stage and I was throw it. It was so,so,so cool, I'm so glad I am A tiny little sweet Shrimp.You know the performance where Joe fell in front of millions of people on national television? ;) well remember how the girls RUSHED the stage at the beginning? (that was planned for that performance) That was exactly what it was like for this concert. But I figured they'd make everyone go back, right? NOPE. There was this HUGE crowd of people. And THEN after all the children rushed the stage in clouding me, all of the Mom's decided to stand on their chairs. I really felt like I was in one of my Dreams I had about The Jonas Brothers Except it was Real I so amazed trow out the whole Concert. They NEVER let people rush the stage anymore.

But Jewel's Was Sitting with my Mom and standed on a chair and was having a Blast my Mom Told me... of course security made people get down, But they let her Standed up. Kevin didn't see me, but I was on Nick's and Joe's Side and Kevin kind of in the middle but right next to the Stage And I recorded all of Them Mostly Joe cause he was so close to me And My Twin Sister She Recorded most of the Concert she is a Really a Great Recorder. Thanks Sissy. But Joe did definitely saw me alot of times and I think he smiled to me a Couple time I almost touched him and almost held my Hand it didn't happen but that's OK, I was like 4 inches away from his feet, it was so Amazing.

And Joe! He smiled for most of the concert. As I said, it Was a Dream come true the Whole intire thing was a dream come true. All of the backup band was too far away to try and get looks from. RIGHT after the boys left the stage, the fireworks started :) AND DEFYING GRAVITY WAS PLAYING OVER THE SPEAKERS DURING THE FIREWORKS!!! It was perfection. Then they place burned the flag they had been using for years since it had a lot of holes in it. It was really beautiful :) it was so amazing. It was one of the best 4th of July I have ever had. And my Mom buy ed me a Jonas Brother Shirt and A Jonas Brother Tour Book and my Sister A Sweeter and My Niece a Shirt it was so much Fun, Thank You Mom. This was my Dream Come True And It Came True :)

We Went Too Price Too Pick Up Jewels

2009-07-13T16:56:00.000-07:00

So then a Couple days later we drove down too price too pick up my Niece Jewels too take her with us up too Provo, Utah for the 4th of July. So we got her stuff all packed and ready to go, and then she good Bye to her Grandma Davis and Grandpa Davis and We had A Big Surprise for her and Me it was because we well not see her again for a Very, Very long time. And this Surprise was one of my Main Birthday Presents I always wanted And Was That We Are going To See THE JONAS BROTHER"S For The Stadium Of Fire. OMG ThE JoNaS BrOtHeRs :) :) :) :)

OMJ (Oh My Jonas) This was The Second Best Of My Life, Because The First Best Day Of My Life Was When I Got My New HEART. And this was the Second. OMG OMG OMG..... I Well Blog After The JONAS BROTHER CONCERT.

Well The Next Day We Get A Phone Call By Dr.Emily Thr Heart Transplant Cordanator

2009-07-13T16:36:00.000-07:00

Well then the next day that we were leaving to go to Saint George. We get a Phone Call by Emily And She Said "Hi Paula this is Emily i just wanted to tell you that Megan's biopsy was perfect it was a 110 just do the changes we discussed in clinic and then we well see you on the appointment date we just set up thank you." And then right after my mom herd that voice mail me and her were like yes yes. Hurray

My Heart Was In REJECTION

2009-07-10T20:41:00.000-07:00

Well so then she said my Heart was in REJECTION. And the reason was Because my Lab Work was All Very Bad Results, so she said that my Heart Cath would be like 2.889 instead of how good they were last time which was like 1.112 So I just Said to my Self " I might of wells just Give Up on Every thing. And me and my Mom was so scared and stuff. So then we left the Hospital and went and saw some of my B.A.C.A Guy's who was Spongrob, M&M, and Speedy but I Call him Dr.Speedy. SO i told all my B.A.C.A guys the bad news that my New Heart was getting Sick. Well so we went and ate at A&W with Speedy and M&M, and then the Next Day we Stayed at the Ronald House. Then we went back Home to ST.George.

All About My Heart Cath On Friday June 26, 2009

2009-07-10T19:57:00.000-07:00

Well the day before we drove up too Salt Lake City, Well my Mom had too first go too Work at The Hospitial, And my Mom gave us an Appoitment to a Masagge Place and it was prettty cool because it was my first time. Well so the Next day was my HEART CATH. And well so we got at the Hospitial and Checked in and every thing. Well So my came into the operating room thing and then they told her she had too leave because I wasn't Falling asleep. So when she left I still wasnet falling Asleep and then they had too give me alot more Laghing Gas so when they did that the Lemon Smell went awaway so it smelt really Bad. Well and I guess well I wouldn't Wake Up at all Because I usally Wake up In about 2 Hours, but this time I didn't Wake Up for 5 Hours. So that wasn't good but I Did woke Up which was good. And then After That we Went down to The CARDIOLAGEY DEPARTMENT and so then they did my Heart Cardiogram, And well then After that we went in and Saw DR.Evritt well and then she looked at the LAB WORK Results that they did during my Heart Cath. Well then she Said...........

My Favorite TV Show J.O.N.A.S

2009-05-31T22:11:00.000-07:00

I'm So Sorry I Haven't Been Blogging, This Is What's Been Going On

2009-05-31T21:57:00.000-07:00

Well this is whats been going on for the last mounth. First I went too an Appointment at the end of April and It was a Great Appointment. They just checked out too see how Thumper is doing which is my New Heart of course

they just did an ECHO CARDIOGRAM and the ECHO was great, and then the did the small check up of course you know like Listen to my heart and see how good Thumpers Ticker is working, and it was working the way it sapost too be and that was Awesome. And then they did the rest. And then decided to Seclude my next Heart Cath which is going to be on June 28. So then we did all of that. And then we went Back home to saint George.

And the next thing that I remember is that we went down to price and went and saw my Niece Jewels. And well I did have a lot of fun with Jewels it's just that right now my family of Jewels which would be Jewels Dad, Mom ,and her Grandma Davis which is her moms moms, And Grandma Paula which is jewels Dads mom and which is my mom too cause Jewels Daddy is my Brother. Well anyway and so we saw jewels from noon to 6:30 at night for about 3 day's cause she is in Custody with Jewels moms mom anyways so that was kinda of sad too see Jewels like that but it was OK at lest I got too see her. And then we Drove back home, And Stuff. I real Blog again really soon. And it well be about going too my Next Appointment,Plus I got too see one of my Heart Babies, Which was Kadeince.

I Went And Saw The Hannah Montana: The Movie With My Twin Sister Jacqueline And My Brother Lamar

2009-04-13T15:18:00.000-07:00

My Sister's Boyfriend Is In The ICU In Las Vegas Cause He Was In A Serious Car Accident, And Please Pray For Him His Name Is Tim

2009-04-10T11:54:00.000-07:00

Utah Driver Critically Injured In Falcon Ridge Wreck NHP ( Nevada Highway Patrol) Claims Vehicles Drag Racing, One Arrested. A Utah man was critically injured on Sunday night during a wreck on Falcon Ridge Parkway in Mesquite. Initial reports from the Mesquite Police Department indicated that the individual had died later in the evening. However, according to the victim’s mother, the young man is clinging to life in a Las Vegas hospital. “He’s a good kid,” said Stacy Nelson, mother of Timothy Maas, the man who was driving the BMW on Falcon Ridge Parkway around 9:30 p.m. “There was no alcohol or drugs found in his system.”
Nelson was told by friends who were on the scene of the accident that no drag racing was involved. “He was taking the car for a test drive, and opened it up,” Nelson said on Tuesday morning. However, the Nevada Highway Patrol has confirmed that the vehicles appeared to be drag racing on Falcon Ridge Parkway. The driver of the second vehicle is currently in the Clark County Jail on charges involving the wreck. According to witnesses, the 21-year-old driver of the BMW lost control and struck a curb, causing the vehicle to roll several times.
The second vehicle, reportedly a 2005 Dodge Neon, veered right and struck another curb, causing it to flip as well. According to NHP, the vehicles did not hit each other.
When the BMW rolled over, Maas was thrown from the vehicle. According to his mother, he sustained severe head injuries, broken ribs, and a punctured lung, and was Life-Flighted to Las Vegas. Now he is fighting for his life, with bleeding in his brain. “He’s on four different prayer lists right now,” Nelson said. The passenger in the BMW, James Austin, received minor injuries.
Both men were from Utah. According to one police officer, departments often see an uptick in occurrences of illegal street drag racing after the release of movies which glorify the event.
The officer pointed out that the fourth installment of “The Fast and Furious” hit theatres on Friday, just two days before the accident. And my Twin Sister Jacqueline dosen't know what to really do about it So maybe you guys can help me give her some advice, just please Pray for him his name is Timothy Maas Thank You.

All About My Heart Cath On Last Friday And My White Count Is To Low

2009-04-04T15:28:00.000-07:00

Well last Friday I had my heart Cath done. And well so me and my mommy went into the same day surgery and they called me and then i got all ready too go in the Cath lab, so i went in asked them if i could page Holly the Child Specialist, and so they did. And well so the Doctors and Nurses putted my IV in first before I went in, and then I got Scared and was crying and my Mom said " hunny why are you crying sweety". And I said " Because I like it when they do everything the same way they always do , cause the nurse was going too give me some Medicine and said too my that this is never the way it's soapiest too be. And so my Mommy said too the Nurse that she doesn't need that, So the Nurse said OK then. So I told her that the smelling i wanted to be Root Beer in the Anastasia mask, and she said OK. and I then went finally asleep. Well so I guess waked up around 2 o'clock, and I woke up and just said my Mommy I want too wacth my new CD/DVD Jonas Brothers DVD. And she said OK. And the funny thing was I guess when I was Asleep my butted my ear phones in my Ear and she said that I was listening too my New CD of Hannah Montana: The Movie Soundtrack, which was kind of funny.So we got all done with my Heart Cath and I then got dressed in my regular clothes, and we left and went up to the First Floor too Cardiology too Dr.Everett. Well so we went and did my Echo and it was very good and Prefect, also my EKG. And so then I went too clinic the next day and Michelle and Dr.Everett said that my Prograf Level was still very messed up, So know I like two different dose at Night and Morning. And then they told me and my Mommy that my White Count went back down too 2.4 from 4.2, and 2.4 is not good. So ya anyways, and I'm Sixteen Years Old.

It Was My Sixteenth Brithday

2009-03-29T11:18:00.000-07:00

ok well so theis is whats been going on for ther last week. Well know I am Sixteen years old, I truned sixteen on the 22 of March which was a Sunday. And put see I have been Home all theis time and so I had A blood test on the 20th of March and so they checked my Prograf Level and it was really, really High. So then they checked it again on Monday but we didnt get the results back, so I think they sent the results up to Primarys for Dr.Evritt too check and see the Results. And Well and My Blood Presure was being Really wired last week, but know it is alot better. Well so on my Brithday It wasen't a sweet Sixteen, But it was really fun and Stuff. So know here's a New old Post for everything thats been going on again. I know I haven't been Posting for a very, very, very long time Iam so, so, so Sorry..... Well theis is what I got for my Brithday. Heres a List of what I got. Miley Cyrus Breakout Platinum Edition CD,Hannah Montana: The Movie Soundtrack,Demi Lovato Don't Forget [Deluxe Edition],Jonas Brothers: Bonus Jonas Edition, And Concert Ticket's too go see The Jonas Brothers,(Stadium Of Fire:Jonas Brothers Lavell Edwards Stadium Provo,UT Saterday 7/4/2009 8:00 PM. The Jonas Brothers World Tour 2009 Las Vegas, NV Saterday Aug 1, 2009 7:30 PM. Well so ya I had a great Brithday.

Theis Is What Has Been Going On Sense I Came Home

2009-03-19T10:50:00.000-07:00

Well I'm so so so sorry i haven't blogged for a very long time. Its just that i have been busy with me going home and finally going back too school. Well so know I have been home for 3 Week's as of tomorrow which is going to be a Friday.Well so this is what has been going on sense i have been home, first we keep moving too all this houses so we have place too sleep and stuff, just too let you guys know we are not POOR YET which is a good thing for know. So well we had no more place too live at so we had too stay in a hotel for a while,and then we got kicked out of the Mooter Home, but its still OK cause we are living in this house, and its a really wired house I have ever seen in my whole in tire life just too be serious. Anyways so know were living in the wired house, but we did find a house too buy which is so so existing, and so that's about it for know, so I well Blog again later.

Gracie Jean Gledhill

2009-03-05T16:49:00.000-08:00

Gracie Jean Gledhill, age 11 months, passed away Monday, March 2, 2009 due to complications from a congenital heart defect. Gracie was born March 20, 2008 to Tom and Michele Gledhill in Salt Lake City, Utah. Words cannot express the love we have for our Gracie Girl. She captured the hearts of everyone who knew her. Her eyes looked into your soul. We cherished her smile, her sweet spirit and were in awe of her continual fight for life. Gracie was our sunshine. Her light and amazing story was contagious. She deeply touched hundreds of people worldwide through her blog. She endured more trials, pain and affected more people than most of us will do in a lifetime. We are better people because of her and look forward to being a forever family. She is survived by her parents, her loving brothers Max and Taylor and her sweet sister Callie. Grandparents; Grant (Arlene) Snow, Connie (Gary) Mayer, Katherine (Theron) Wiser, and Rhett Gledhill, along with many aunts, uncles and cousins. We want to thank all of the amazing doctors and nurses from Primary Children’s Medical Center who not only cared for Gracie, but loved her too. We will be forever grateful for their service. Funeral services will be Saturday, March 7, 2009 , 12:00 noon at the Highland South Stake Center, 9600 North 6800 West in Highland, Utah. There will be a viewing Friday evening from 6:00-8:00 p.m. at the same location and from 11:00-11:45 a.m. prior to services. Services provided by Warenski Funeral Home. Interment: Highland City Cemetery.

I'am Finally Home.

2009-03-02T17:45:00.000-08:00

OK well I'm so, so sorry that I haven't been Blogging for like over a Month. Well anyways the Reason is cause I'm Back Home..... Finally back home. Well any ways this is so far whats been happing for the last few Week's. At First of all as I said before my Heart Cath went Perfectly Geart and Awesome and so that was the main reason for me too be ably too go Home down in ST.George. And well and then I think like two week's ago and I went and saw Julian and we talked about, well so we started talking. And she said "know Megan you need too stop doing this you have too try too get it out of your head or you well need to go too a Treatment Center for me to get help" But we are working it out and trying too find out how too stop it, so that's a good thing. well and then me and Julian we were talking about more stuff. Anyways and then me and her had too talk about my niece jewels which is about some bad stuff with Jewels my niece. So we did do that and it went really really pretty good but very sad too, so know we are just going too make shore that Jewels is OK now. So we both finally got all done talking. And then like a week ago I went and saw her again and me and her talked about everything for me when I get back ST.George and also back too School. Well so then I had my Last Clinic day on Thursday. And then me and my Mom, Sister Jacqueline and Brother Lamar well we went and saw The Jonas Brother 3D Concert, and it was so cool. Well I well Blog again as soon as possible.

All About My Heart Cath On Friday.

2009-02-16T23:08:00.000-08:00

Well so we went into the same day surgery and they called me and then i got all ready too go in the Cath lab, so i went in asked them if i could have my IV put in before i was asleep so they said that it was OK. So her I'm smelling apple in the Anastasia mask, and then the next thing I noticed that when they putted the Iv in me and then my blood was going up the tube into the IV fluids. Well so then the Doctors were so confused and worried, and I wasn't going too sleep with the laughing Gas, but they scared me so much. That I wasn't holding the mask on my face so then they finally said and told me that everything was alright. They said that they just hitted my arider when putting my IV in me. So then I wasn't scared anymore and I then went finally asleep. Well so I guess woked up around 2 o'clock, and I woke up and just said I'm Hungry which was so,so funny. So we got all done with my Heart Cath and I then got dressed in my regular clothes, and we left and went up to to the third floor, and we went and saw my bustiest Nurse Anette, well see shes like a second mommy too me, which she is. So we then left the Hospital and went and ate at Iceberg and it was very good. Well and then the Hospital calls my Mom and my Doctor told her too take me back too the Hospital, so we both went back too the Hospital. And they said too us that we forgotten too do my Echo and EKG. Well so we did it and and my Echo was very good, but my EKG was A little off cause my heart was beating too fast. Well any ways Then Dr.Everett came in and told us that my Heart Cath, and it went Prefect she said, well as if you know she told us that this Heart Cath was so post too tell her when I can go Home. Well so any ways Dr.Everett said that we might get too go Home at the end of February or the beginning of March, but she's not quit shore yet. Well so that's about it for know , and just too let you guys know that I well Blog as soon as I can. Well so ya any ways. Oh and I just want too wish you guy's a Happy Valentines Day.

This Is What Has Been Going On For Last Few Day's

2009-02-16T22:45:00.000-08:00

Well this is whats has been going on for the last week. Well first of all I got sick again, and so my Mom called Emily The Transplant Cordinator, and she told my Mom too take me too the Hospital and so we went too the Hospital and they had too do some tests, like a Trout Swab and then i had too have a Flu test, and it really hurt. Cause they had too put a Tube up my nose and it hurt really bad. Well and then I had my Heart Cath on Friday and so me and my mom got up and we both were getting ready and we got dressed and all ready too go, I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital. So then we left our house and went to the Hospital Primary Children's Hospital. Well so we went and went in too the same day surgery and......

All About How It's Been And I Well Blog Again Soon.

2009-02-05T12:49:00.000-08:00

OK well know see I'm still a little bit sick, and I'm still on my Antibiotic Medication. Well so just too let you guys know that ,my grandma and grandpa are still up here with us, and well my grandma is doing a lot better. Well so see my grandpa, grandma,my sister Jacqueline,and my brother Lamar well they a going too the Jazz Basketball Game tonight which is really cool,but I cant go cause I'm Omnipresent and all that other stuff you know. So ell me and my Mommy are staying Home and my Grandma might too. Well see I'm so,so,so,so,so,very,very ,very ,very happy because I get too wacth the bran new episode of Grey's Anatomy and Private Practice, well see in Grey's Anatomy theirs this Doctor named Derick and he's in love with with Meredith Grey, well and see now in private Practice is a different show case see Derick's ex wife is in that show and tonight both off the shows are going to be together which is very cool, and even Derick's going too ask Meredith too ask her too Marry him. Well so ya anyways that about it.

All About My Appoitment With Julian Smith And About My Grandma Having Stroke's.

2009-02-04T15:12:00.001-08:00

Well Today is Wednesday which was my appointment withe Dr.Julian Smith and well for now on only go see Julian on Wednesdays, cause I now she is moving too a new office again. So please you all don't for get all of that. well so me and my mommy woke up, we were kind of late, but not that bad as we usually are well any ways. So we then both got in the shower, and we both got dressed and all ready too go too, well then I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital still, don't forget that ether. And so my Mom had too take my Grandma too the ER because she has been having Strokes, so then me and my got all ready. So then my Mom came and got me and my sister, so then we left our house about at 1:00am because my sister Jacqueline had too be at School by one o'clock and we dropped her off. So then me and my Mom drove too Julian's across from Trolley Square and she dropped me off because she had too go back too the Hospital for my Grandma. And so I went into the Julian's new office down by Trolley Square. Well so then I went and waited for Julian and then she came and got me, well so we started talking. And she said "know Megan you need too stop doing this you have too try too get it out of your head or you well need to go too a Treatment Center for me to get help" But we are working it out and trying too find out how too stop it, so that's a good thing. well and then me and Julian we were talking about more stuff. Anyways and then me and her had too talk about my niece jewels which is about some bad stuff with Jewels my niece. So we did do that and it went really really pretty good but very sad too, so know we are just going too make shore that Jewels is OK now. But so then me and her talked about my Sexual Abuse by Tom, and that was so,so,so,so sad and hard too,I mean like every time I was telling her what he did too me ,I would always stop when i was going too tell her how he hurt me, but I really was so scared, so that was really had and very sad for me too do. So we both finally got all done talking. and know Dr.Hendricks works at a Mental Treatment Center called Wasatch Canyons. So then my Brother Lamar came and picked me upped, and we went Home then me and my Brother went and picked my sister up from School at 4:00 p.m. And then we went Home, and my Mom said that my Grandma well might be staying in the Hospital for a while ,I also then took my late afternoon Medicine wicth is always around six. And I'm still on my Antibiotic Medicine. So ya any ways that's about it.

I Had Too Go Too The Emergency Room At The Hospitial.

2009-02-03T19:33:00.000-08:00

And then she said too my mom too take me into the ER, the next morning. Well so me and my mom woke up, so my mom got in the shower and I took a nice hot bath because my legs were aching so bad that i cryed, and we both got dressed and all ready too go, I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital. So then we left our house and went to the Hospital Primary Children's Hospital in the ER. Well me and my mom went there and they took my Temperature and it was at 102 Degrees i think, Well so they did put in a Room finally, and the first thing they did is checked my Temp and my Blood Pressure. And they said They had too give me a IV, and also run some Blood Tests, and they had too Swab my Throat, and I was definitely POSITIVE, and they were so shocked cause they said that i just of just looked at her throat and not Swap that you wouldn't even thing that Megan would have of Strep. And they had too check my Sister Jacqueline, and my Brother Lamar they had too make sure they didn't have strep too so they both were NEGATIVE which was a good thing. And they said that they had too give me some Fluids and Antibiotics right away or I would might have too be ADMITED, but I didn't. Well so we were there all day long Saturday. So they had too checked if it was in my Blood Stream cause if so I would have too be ADMITED right away, but that took about 48 Hours for the results too come back. Well so they Gave me some Antibiotics too take for the next 10 day's 3 time a day. So they said that I had too go too an Clinic Appointment on Monday so they can make sure I'm doing better. Well so we finally left the Hospital that night and had dinner and I took my Medicine and we all went finally asleep Zzzzzz

From Clinic On Last Thursday To The Day Of Being Sick And Then With High Fever And Low Blood Presure And Then.....

2009-02-03T13:26:00.000-08:00

OK well the reason I have not been blogging for a long time like a week ago. Well this is why and this is what happened. So last Thursday which was a Clinic Day and on 29 of January. So me and my mommy woke up, so my mom got in the shower and I took a nice hot bath because my legs were aching so bad that i cryed, and we both got dressed and all ready too go, I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down.So and then me and mom waited for Dr.Everett and Michelle. And then she and her came in and we all talked about everything, and my Medicine and about me being really sick and stuff like that also my white Blood sell is still very,very Low,so and then he and Michelle checked me like listened to my Heart and stuff like that. So and then Michelle told me and my mom about when my Heart Cath is which it is in February on the thirteenth which is a Friday.So well I'm the second third case, which is kind of hard on me, cause usually I don't wake up for a very, very, very, very long time, and that scares Me and my mom, even the Doctor's too. Cause they don't know if it's my Heart or me just copping with that Coping skill I do, know see most of the times when I have Heart Cath's I usually have too stay over night at the Hospital so I really don't know. So on that Clinic Day I was perfectly fine, no Temperture no nothing, I was Healthy, esepted my White Count. And then the next day which was A Friday,well I woke Up and I realized My Thought was Hurting and burning, I felt really Sick so my mom made me some Soup and it burned my throat so I couldn't eat that. Well so my Mommy said Megan Please go back too bed you are so Sick, So that night I Trow upped once and had Diarrhea, and then my Mom told me to Check my Blood Persure so I did and it was so Low you couldn't believe it. Well at first it was like 78/52 Heart Rate at 85, then the Second tome it was like at 80/62 Heart Rate at 100, then the Third time it was at like 82/75 Heart Rate at 102. Well then my mom told me too wait a little while, so we then checked it later and it finally went up too 94/? and then like 101/82 Heart Rate at 105 which was really good, but then my Mom told me too Check my Temperature and I had a Low Grade Fever at first at 97.2 , and then the Second time it was up too 98.3, then the finally Third on was at 99.5,so then my Mom finally Went and Called Primary's Children's Medical Center Hospital. And so she finally got a hold or the Heart Transplant Coordinator and talked too Emily and told her what happened so then Emily said to my Mom "Paula"......

This Is What Has Been Going On For Last Few Day's

2009-01-23T10:24:00.000-08:00

Well this is what has happened the few past days. Well on Tuesday I went and saw Julian and we talked about, well so we started talking. And she said "know Megan you need too stop doing this you have too try too get it out of your head or you well need to go too a Treatment Center for me to get help" But we are working it out and trying too find out how too stop it, so that's a good thing. well and then me and Julian we were talking about more stuff. Anyways and then me and her had too talk about my niece jewels which is about some bad stuff with Jewels my niece. So we did do that and it went really really pretty good but very sad too, so know we are just going too make shore that Jewels is OK now. So we both finally got all done talking. and know Dr.Hendricks works at a Mental Treatment Center called Wasatch Canyons. And then me and my mom,sister Jacqueline, and my brother Lamar well we drove down too Price too pick up Jewels, and visit my Family exceptionally my Grandma because she has been sick and had A stroke. And then we drove back up too Salt Lake and we had Jewels with us,it was really fun with my Niece Jewels, we had so much fun. Well and my Grandma and Grandpa came up her and picked her up yesterday, I wished she could of stayed longer but she didn't. Well and then today me and my mom went too and had too talked too Dr.Heindrick's, well we talked and my mom left and me and him talked about some stuff like about my mood and things were going, and what my feelings were about what me and Julian has been talking about, Do we then finally got done Talking, and then he said had too change my Medicine so he did ,and he had too increase my Medicine and said if this thoughts keep getting worse more then he well have too add another Depressant Medication.Well that's about it ,I Well blog again soon.

I'm Going Back Down Too Price For My Grandma Cause She Is Really Sick.

2009-01-15T12:36:00.000-08:00

Well tomorrow, me and my Family are going down to Price again, down in Carbon County, and we well be going to go see my Niece Jewels, my Grandma and my wonderful hard,stressful family. It's mostly for my Grandma, well because my Grandma is very, very sick and nobuddy knows why, but she does but she wont tell no one any thing. And i'm very worried because i dont know what too do,well ya any ways. Well just let you guys know that we are going to wake up in the morning and me,my twin sister Jacqueline, my brother Lamar, and my mom are going to get up in the morning, take a shower and we well all get dressed and get ready to leave and I well take my Medicine and all of that stuff, then we well start on the go to Price. I well be in Price till about Saterday or Sunday night. we well drive back up to Salt Lake and well spend the rest of the day at home in Salt lake and I really want too help my Grandma but she won't let any know or anything about anything, she sounds horriable like she's very sick, she talk too any one,and I think my Grandma had a Stroke, but I'm not shure. And just to let you all know I well try to Blog when I get back home, but it deepens if I have some time too, and how things are going, so know I'm going to get in bed so I can wake up early in the morning so I have enough time to do every thing and get everything done in the morning, and most very, very, very important thing is my Health and Heart Mediciane and all that other stuff that I have to do every morning, So ya well now I'm going to take my Medicine and go too bed. well have sweet dreams and good night. And Please Pray for my Sweet Grandma. Zzzzzzz

All About Today's Clinic Day.

2009-01-15T10:56:00.000-08:00

Today was and is Thursday, which is A Clinic Day. So me and my mommy woke up, so my mom got in the shower and I took a nice hot bath because my legs were aching so bad that i cryed, and we both got dressed and all ready too go, I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down.So and then me and mom waited for Dr.Tani and Michelle. And then he and her came in and we all talked about everything, and my Medicine and about me being really sick and stuff like that also my white Blood sell is still very,very Low,so we then talked with with the Doctor about me being really sick. And then he and Michelle checked me like listened to my Heart and stuff like that. So and then Michelle told me and my mom about when my Heart Cath is which it is in February on the thirteenth which is a Friday.So well I'm the second third case, which is kind of hard on me, cause usually I don't wake up for a very, very, very, very long time, and that scares Me and my mom, even the Doctor's too. Cause they don't know if it's my Heart or me just copping with that Coping skill I do, know see most of the times when I have Heart Cath's I usually have too stay over night at the Hospital so I really don't know. Anyways so we finally got all done with Clinic, and then I saw one of my Heart Babies, wicth his name is Teagan. Well and it was so fun and he is such a sweetheart. So then we went home finally from the hospital and spent the rest of the day at home with my wonderful family, my twin sister Jacqueline, my big brother Lamar, and my wonderful Mom, so we had dinner, I finished my Homework, cause I had school today. Well and then me and my Family had dinner and it was good, so I wacthed Grey's Anatomy and Private Practice and I took my nice hot shower and got ready for bed. and then I went too sleep. Zzzzzzzz

All About Yesterday's Appoitment With Julian Smith.

2009-01-15T10:11:00.000-08:00

OK well as all you all know that yesterday was Wednesday which was my appointment withe Dr.Julian Smith and well for now on only go see Julian on Wednesdays, cause I now she is moving too a new office again. So please you all don't for get all of that. well so me and my mommy woke up, we were kind of late, but not that bad as we usually are well any ways. So we then both got in the shower, and we both got dressed and all ready too go too, well then I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital still, don't forget that ether. So then we left our house about at 1:00am and went to the Julian's new office down by Trolley Square. Well so then I went and waited for Julian and then she came and got me, well so we started talking. And she said "know Megan you need too stop doing this you have too try too get it out of your head or you well need to go too a Treatment Center for me to get help" But we are working it out and trying too find out how too stop it, so that's a good thing. well and then me and Julian we were talking about more stuff. Anyways and then me and her had too talk about my niece jewels which is about some bad stuff with Jewels my niece. So we did do that and it went really really pretty good but very sad too, so know we are just going too make shore that Jewels is OK now. So we both finally got all done talking. and know Dr.Hendricks works at a Mental Treatment Center called Wasatch Canyons. So then I and My moms friend finally got all done with everything and stuff that we had too do, so we then left and went finally home. I also then took my late afternoon Medicine wicth is always around six. So the I spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom too,but she wasn't with us because she had too drive down too ST.George for a dentist appointment, but she was going too be home that night wicth was good. Well so we then had dinner, and then I started on my Homework that is going too be due in like a day or two but I'm not quit shore really, but i got all done wich was fantastic.Well I then wacthed Hanna Montana, Nip/Tuck and also the Movie called Camp Rock with The Jonas Brothers and Demi Lavoto, oh and also A movie called Another Cinderella Story and Selena Gomez plays in it which is pretty good. So I then took my nice hot shower and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and me and my Family finally went to sleep and had sweet nice wonderful dreams. Zzzzzz

All About My Last Monday's Clinic Day And What Well Happen After My Apoitment With Julian Smith.

2009-01-13T13:20:00.000-08:00

So know here's the deal well first of all I totally forget about last weeks Clinic Day and well the only thing I remember is about my White Blood Cell Level wicth is very bad cause its way too low and they don't know why and some more things too And well I well blog again Tomorrow after my whole day with my Appointment with Julian Smith.OK well as all you all know that today it is Monday and well today was not Clinic, cause I now I have no more clinic day's on Monday's remember. So Shore you all don't for get all of that stuff. Any way's well so me and my mommy woke up, we were kind of late, but not that bad as we usually are well any ways. So we then both got in the shower, and we both got dressed and all ready too go too, well then I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital still, don't forget that ether. So then we left our house and went to the Julian's new office down by Trolley Square. Well and now remember theirs no more Clinic Day's on Monday's, well so now on Monday's I still only go see Julian Smith and Dr.Jeramey Hendrick's too, well nothing has changed from that. So I waited for Dr.Hendricks and Dr.Smith too, so then we started talking. My Psychologist Dr.Jeremy Hendricks, and Dr.Julian Smith was there and they were really worried about all of the stuff we have been talking about. They didn't know if it was a Behavioral thing, or a way just to cope. But we think why I do it, its just do it cause it is a good very good coping strategy, and it helps but its not what people do in life, and so we are now working on trying to find out what other coping skills well help, then they said that "If this never stops that I well have go back too the Residential Treatment Center for me to get help, But we are working it out and trying too find new coping skills, so that's a good thing. Well so ya any way's so me and Julian was not done talking, but Dr.Hendrick's was. well me and Julian we were talking and stuff like that. Anyways and then she told me that me and her had too talk about my niece jewels which is about bad stuff with Jewels my niece. So we did do that and it went really bad and very sad too, so know we are just going too make shore that Jewels is OK now. So we both finally got all done talking, and we went got my mom. Well see now Julian and Dr.Hendricks moved their places so they don't work at the Hospital any more. Julian works at a office building next too Trolley Square and Dr.Hendricks works at a Mental Treatment Center called Wasatch Canyons. So then we finally got all done with everything and stuff, so we then left and went finally home. I also then took my late afternoon Medicine wicth is always around six. So we then we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner, and then I started on my Homework that is going too be due in like a day or three but I'm not quit shore really, but i really didn't get it all done so I'm going too finish it tomorrow, oh and then I wacthed Hanna Montana, Nip/Tuck and also the Movie called Camp Rock with The Jonas Brothers and Demi Lavoto. So I then took my shower and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep. Zzzzzz

All About My Monday And After Me And My Mom Went And Got Jewels.

2008-12-31T23:27:00.000-08:00

OK well as all you all know that today it is Monday and well today was not Clinic, cause I now I have no more clinic day's on Monday's remember. So Shore you all don't for get all of that stuff. Any way's well so me and my mommy woke up, we were kind of late, but not that bad as we usually are well any ways. So we then both got in the shower, and we both got dressed and all ready too go too, well then I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital still, don't forget that ether. So then we left our house and went to the Julian's new office down by Trolley Square. Well and now remember theirs no more Clinic Day's on Monday's, well so now on Monday's I still only go see Julian Smith and Dr.Jeramey Hendrick's too, well nothing has changed from that. So I waited for Dr.Hendricks and Dr.Smith too, so then we started talking. My Psychologist Dr.Jeremy Hendricks, and Dr.Julian Smith was there and they were really worried about all of the stuff we have been talking about. They didn't know if it was a Behavioral thing, or a way just to cope. But we think why I do it, its just do it cause it is a good very good coping strategy, and it helps but its not what people do in life, and so we are now working on trying to find out what other coping skills well help, then they said that "If this never stops that I well have go back too the Residential Treatment Center for me to get help, But we are working it out and trying too find new coping skills, so that's a good thing. Well so ya any way's so me and Julian was not done talking, but Dr.Hendrick's was. well me and Julian we were talking and stuff like that. Anyways and then she told me that, me and her had too talk too my mom about something me and her talked about last Thursday, which is about Jewels my niece. So we did do that and it went really bad and very sad too, so know we are just going too make shore that Jewels is OK now. So we both finally got all done talking, and we went got my mom. Well see now Julian and Dr.Hendricks moved their places so they don't work at the Hospital any more. Julian works at a office building next too Trolley Square and Dr.Hendricks works at a Mentel Treatment Center called Wasatch Canyons.Well so than me and mom went and refilled all of my Medicine if it had too be refilled at Primary Childrens Hospitial and if so we went back up and picked up all of my refiled Medicine up from Primary Childrens Hospitlal. So we then we finally got all done with everything and stuff, so we then left and went finally home. I also then took my afternoon Medicine. So we then we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner, and then I started on my Homework that is going too be due in like a day or three but I'm not quit shore really, but i really didn't get it all done so I'm going too finish it tomorrow, oh and then I wacthed Hanna Montana, Grey's Anmotey and also Nip/Tuck. So I then took my shower and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep. Zzzzzz

I'm Going Back Down Too Price For My Sweet Jewels.

2008-12-27T19:11:00.000-08:00

Well tomorrow, me and my Family are going down to Price again, down in Carbon County, and we well be going to go see my Niece Jewels, and my wonderful hard,stressful family. It's mostly for Jewels, well cause it's Christmas and I have been missing her so,so,so much We well have Lot's of fun I hope, and I can't wait too see her cause, she misses me so much and she well be so, so, so, so happy and excited. Well we are going to wake up in the morning and me,my twin sister Jacqueline, my brother Lamar, and my mom are going to get up in the morning, we well all get dressed and get ready to leave and I well take my Medicine and all of that stuff, then we well start on the go to Price. I well be in Price till about on Sunday night. we well drive back up to Salt Lake and well spend the rest of the day home in Salt lake and I can't wait till we get back cause it's the next new episode of Hanna Montana, and I love Hanna Montana, and Miley Cyrus, so I can't wait it well be Lot's of fun. And just to let you all know I well try to Blog when I get home, but it deepens if I have some time, and how things are going, so know I'm going to get in bed so I can wake up early in the morning so I have enough time to do every thing and get everything done Monday morning, and most very, very, very unimportant my Health stuff that I have to do every morning, So ya well now I'm going to take my Medicine and stuff. well have sweet dreams and good night. Zzzzzzz. And Merry Christmas And A Happy New Year.

All About My Wonderful Christmas.

2008-12-27T18:35:00.000-08:00

Well on Thursday wicth was Christmas, well it went really petty good, but i think I got too many Presents wicth I shouldn't of had that Many. Well this is what happened on Christmas morning me ,my sister Jacqueline, My brother Lamer, and my Mommy. Well we all first waked up and I first had to do and take all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital still, don't forget that ether. Well then me and my Family went by our Christmas bush instead of a tree, well this year we decided to have a Christmas bush instead. Well me ,my Sister,brother, and my mommy. Well we started too open our presents and this is what i got for Christmas. I got some really cute shirts,pants ,and even pajamas. And I also got the first season of Hannah Montana, the Baby Mama DVD. And I got the Cd's from The Jonas Brother's and Their New Album "A Little Bit Longer", Taylor Swift, and even David Archuleta wicth is really cool couse I get too meet him. I even got Gift cards to Jcpenny's,FYE,Old Navy and some other places too, and even some money of my very own. Well so that's all and I loved every thing I got. So well ya any ways I hope the other Heart Babies had A very wonderful and Great Christmas exspeacialy the babies that are in the Hospital now. Well Merry Christmas too everyone and A Happy New Year.

My Sweet Heart Baby Kaidence

2008-12-22T22:08:00.001-08:00

My little Beautiful Heart Baby Kaidence has been having another hard little time in her wonderful beautiful life. Know her wonderful, beautiful new perfect heart is getting really sick again. Every one please pray for my little Heart Friend she really needs it and especially her Mom and family. Kaidence is a very strong little girl and if she can go throw all the stuff that happened in her past, and made it then she can go throw this Rejection, and I know she is a very, very, very strong little girl. And Shauntelle please tell my sweet little Kaidence that I love her very much, And that I'm very sorry. But if you really want to know that I know she well make it and she is a very, very strong little girl and i love her very much, so every one please pray for her please, and she is really sick. And I love you Kadience and your wonderful familey, and Kadeince was there for me so know I'm going too be there for you my Sweetheart Kadience too. Love you and Merry Christmas.

Gift Of A Heart

2008-12-22T21:59:00.000-08:00

The Stephenson family is attempting to pay forward all the kindness they received last Christmas when their 10-month-old daughter received a new heart. Kaidence Stephenson, now 22 months old, was born healthy in February 2007, said her mother, Shauntelle Stephenson. But in August, the Bountiful family learned Kaidence had a serious heart problem On Dec. 23, 2007, a heart from another child was placed inside Kaidence's chest and began beating for her."Words can't express your feelings," said Mike Stephenson, her father. "Your child is going to get a chance at life, while at the same time grief washes over you, because a poor family had to lose a child so yours can live."When the couple learned a heart had been found, they immediately knelt down to pray for the family whose child died."It is a forever bittersweet feeling," said Shauntelle Stephenson."Another family chose to give to save you from the heartbreak of losing your child."That family is in the Stephensons' thoughts daily as they express gratitude for being together this Christmas."You can't beat the Christmas gift we got last year, but we get to be together this year," Mike Stephenson said.The Stephensons count their blessings as they look for ways to return random acts of kindness to neighbors and family members.They said it was the community support that helped them get through the roller coaster ride of their daughter's health problems after her heart condition was discovered. "Meals came in every other night, after we came home until March," Shauntelle Stephenson said. "Our roof was leaking, and we came home to find our neighbors had stripped it and were putting new shingles on. Packages showed up at the doorstep, and a jar full of money with the book, 'Christmas Jar' was there one night."Kaidence's heart problems began following a summer vacation in Idaho.Shauntelle Stephenson took Kaidence and her sons, McCaden, now 7, and Camden, now 4, to visit family in Idaho in July 2007. Everyone came down with a stomach virus."A few weeks later I knew something was really wrong," she said about Kaidence.Her daughter's cry was soft and weak, plus her cough did not sound normal. She took Kaidence to the doctor, who sent her to Lakeside Hospital in Bountiful. They sent her to Primary Children's Medical Center.Kaidence was diagnosed with myocarditis, an inflammation of the middle layer of the heart wall, which is usually caused by a viral infection.In October 2007, the Stephensons realized their daughter was getting worse. She was diagnosed with cardiomyopathy -- an enlarged heart -- which can be caused by myocarditis."She was throwing up all night," Shauntelle Stephenson said.Doctors admitted Kaidence back in the hospital and on Oct. 29 when it looked bleak, Primary Children's medical staff installed outside of her small body a Berlin Heart, a mechanical "bridge-to-transplant" device created for use in pediatric patients. It did the pumping for the left side of Kaidence's heart, her mother said.The hospital had to receive permission from the Food and Drug Administration to use the device for compassionate use, because the agency has not approved it.The equipment was flown in from Germany, and two doctors also traveled from two other countries to Primary Children's to train the medical staff on how to put it in and how to care for Kaidence, Shauntelle Stephenson said."Kaidence was the first one in Utah to use it," she said. The pump was to help the infant until she became healthier or another heart was found for her.Everything was going well, until the right side of her heart started failing in December.The Stephensons knew they had two options: Hook a pump to the right side of the heart or hope for a heart transplant.Now as they prepare for Christmas, the Stephensons can only talk about how grateful they are to have their only daughter home with their sons this year, even though medical bills keep piling up."We have great insurance," Shauntelle Stephenson said. "But a transplant is a financial obligation that never ends. We pay $600 a month in co-pay for her anti-rejection medication. Without insurance it would cost us $10,000 a month."Kaidence is at the age where she's not too sure what Christmas is all about, her parents said. Hanging up high in the tree is an ornament that someday will be special to her.The silver heart with a red-jeweled heart in the center is engraved with 2007 and for now, it is a special ornament for her parents.Kaidence does like the lights on the tree and enjoys candy canes. Her family is not attending as many Christmas events as they have in the past in order to protect the tiny girl from cold and flu viruses that could easily kill her.They have gone to church and school Christmas parties, because they want to show others how well she is doing.But the downside is they worry."Every time someone coughs you're looking over your shoulder, trying to keep her away," Mike Stephenson said. "But everyone else was a part of it, supporting us and encouraging us with all their prayers."Kaidence, who likes to play cars with her 4-year-old brother, has to wear a mask when she does go out. A sign on the door asks visitors to stay away if they have a cough, runny nose or have been around anyone who is ill.And there is always the worry that her body will reject the gift inside her chest."We live every moment the best we can," Mike Stephenson said. "We'll face that stuff if and when it comes. We don't focus on that. We just enjoy every second we got with her.""We've been so blessed, we can't complain," Shauntelle Stephenson said. "This girl has a purpose." And I love her so,so,so much.So every one please,please,please help here,she'spart and my life too,so please help please.

All About Today After My Heart Cath And Clinic.

2008-12-22T16:43:00.000-08:00

Well let me tell you about today. Well now you do know that I did have too go too Clinic cause of my Heart Cath and my Echo on Friday. Ok well so theies is what happpened today. Well So me and my mom first woke up and me and my mom got in the shower I got in first then she did, and well we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done then I took my Medicine wicth is my Prograf, then we went to Cardiology, so they got me ready and I got my Echo, EKG and they didn't even know what to do, well we got that part done. And then Emiley and Michelle came in told me and Mommy that she checked the results and she said that it is still leaking and there is still floewed around my Heart, and thery is more flouded. Well so she told us that every thing is the same and that me and my mommy schouldn't worrie, but you know of course we do and it's just that my Heart Cath Results was a 2+ and it's aleays been a 0-1, so i really don't konw. So then I had too see Dr.Hendrickss about my Pchcractrice Medications. Well so we then finally got done with the Hospitial Primary Children's Hospitial. And so we left the Hospitial for me too go see Julian Smith cause know her Office got mived down by Troly Square, and Dr.Hendriks is going to be working at Wasacth Canyons now. Well so me and my mommy drove down too her office and I talked too her a lot about stuff that's been happening in my horrible, sad Life, well then me and her talked about some other bad stuff too, stuff like that I would might have too goo back too the Residential Treatment Center too get some more help, cause I having a hard time and I'm not copping good, not at all, so I have too stop what I have been doing to myself, or its not going to be OK,not at all she said. Anyways and then she told me that, me and her had too talk too my mom about something me and her talked about last Thusdayy, which is about Jewels my niece. So we did do that and it went really bad and very sad too, so know we are just going too make shore that Jewels is OK now. Well so than me and mom went and refilled all of my Medicine, and we went back up and picked it all of my Medicine up. So we finally got all done with the Hospital. So we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner. I took my hot warm shower and also took all of my Medication, and then I checked my Blood Pressure andTemperature, and I got ready for bed and we finally went to sleep.Zzzzzz Oh and then yesterday me and my mommy went too the movies and we went and saw the movie Bolt. It was such a very,very cute movie, and Merry Christmas.

About When Emily Called And Told Me My Biopsy Results.

2008-12-20T19:51:00.000-08:00

Well Emily called today and said my Biopsy Results was a 2, so my Mommy doesn't know what that really means. Because last time it was a 0 - 1, so know we have to find out by Dr. Everett on Monday, they also for got too test my Prograf level, and they also for got too give me my Prograf Medicine too. So we have too find that on Monday and also they said that there was a leakage in my Heart so we also have too do that on Monday too again another Heart Echo. Well so I really don't know what to tell you guys and my Heart Babies, I'm so sorry. So I don't really know whats going on with my Heart and the Doctor's don't know ether. So me and my Mommy are really worried about my Heart. Megan is really so important to me and I am worried..

Me So Sweet And Cuite In The Hospitial When I Was In The Play Room.

2008-12-20T11:21:00.000-08:00

All About The Rest Of My Heart Cath And I And The Docter's Don't Know If I'm In REJECTION.

2008-12-19T19:13:00.000-08:00

And then so my mommy got on the phone with Emily and she said too my mom that well yesterday was Clinic but we didn't have too go cause of my Heart Cath, Well and then she said that we forgot about the the Heart Echo, So we did the ECHO and it look pretty bad, They said that there was a Protrusion and alot of Flowed around my Heart. But they don't know if its leaking or not. So we don't know if I'm i REJECTION or not their not shore. So i have to go back in on Monday and they have too do another Echo done and alot of blood test done too. So I'm very worried. Well and then we finally got too go home and then we had Pizza for dinner and then I got ready for bed and wactehed Hannah Montana and then blogged and then I took my Medication, and took a hot nice shower and went too sleep. Zzzzzz Well and just too let you guys know that I well try too up date my Blog tomorrow when I get My heart Cath Results. OK guys and my Heart Babies, well Merry Christmas everyone Thank you.

All About The First Part Of My Heart Cath.

2008-12-19T18:49:00.000-08:00

OK well about my Heart Cath today whice is Friday. Well Ok so I woke up and then i got in the shower, and then took my Medication and then my Temperature,and also my blood pressure, and I took all of my Medicine except my Prograf, cause they all ways have too check my prograf level all the time.So we got at the Hospital at about 8:00a.m. Well so then my Mom cheked me in and we waited,and waited,waited,and waited,waited,and waited, and then we finally got called back. So I got every done with that part and then I went too all the way, and i smelled Strawberry. Well so my mommy waited for me for my sweet beautiful eyes too open and me for too wake up. Well so I finally woke up about 2:00p.m. Well and then the nurse gave me a fruit punch slushy. Well and then my mom asked the nurse about my Prograf Level, and then they realized that they didn't do my Prograf Level and they even for got too give me my Prograf Medication too which was very bad. And then they told my mommy to give me my Prograf medicine so she did. So my mom called Emily the Transplant Coordinator and then.......

All About Today Wicth Is Not A Clinic Day Cause It's Monday.

2008-12-14T12:36:00.000-08:00

OK well as all you all know that today it is Monday and well today was not Clinic, cause I know have no more clinic day's on Monday's remember, and how great my Echo's, have been looking EKG, and my Blood Work also. So Shore you all don't for get all of that stuff. Any way's well so me and my mommy woke up, we were kind of late, but not that bad as we usually are well any ways. So we then both got in the shower, and we both got dressed and all ready too go too, well then I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital still, don't forget that ether. So then we left our house and went to the Hospital Primary Children's Hospital. Well and now remember theirs no more Clinic Day's on Monday's, well so now on Monday's I still only go see Julian Smith and Dr.Jeramey Hendrick's too, well nothing has changed from that. So I waited for Dr.Hendricks and Dr.Smith too, so then we started talking. My Psychologist Dr.Jeremy Hendricks, and Dr.Julian Smith was there and they were really worried about all of the stuff we have been talking about. They didn't know if it was a Behavioral thing, or a way just to cope. But we think why I do it, its just do it cause it is a good very good coping strategy, and it helps but its not what people do in life, and so we are now working on trying to find out what other coping skills well help, then they said that "If this never stops that I well have go back too the Residential Treatment Center for me to get help, But we are working it out and trying too find new coping skills, so that's a good thing. Well so ya any way's so me and Julian was not done talking, but Dr.Hendrick's was. well me and Julian we were talking and stuff like that. So we both finally got all done talking, and we went got my mom. Well so than me and mom went and refilled all of my Medicine if it had too be refilled,and if so we went back up and picked up all of my refiled Medicine up. . So we then we finally got all done with the Hospital and stuff, so we then left the Hospital. I also then took my afternoon Medicine. So we then we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner, and then I started on my Homework that is going too be due in like a day or three but I'm not quit shore really, but i really didn't get it all done so I'm going too finish it tomorrow, oh and then I wacthed Hanna Montana and Grey's Anmotey. So I then took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep. Zzzzzz

All Of My Pump's I Was Hocked Up Too Keep Me Alive.

2008-12-14T10:38:00.000-08:00

All About My Last Thursday's Clinic Day.

2008-12-13T21:14:00.001-08:00

Well this is what happened on last Thursday, which is a Clinic day and stuff. Well So me and my mom first woke up and me and my mom got in the shower I got in first then she did, and well we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done then I took my Medicine wicth is my Prograf, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down. So then I waited for Dr. Julian Smith, and I talked too her a lot about stuff that's been happening in my horrible, sad Life, well then me and her talked about some other bad stuff too, stuff like that I would might have too goo back too the Residential Treatment Center too get some more help, cause I been having a hard time, and I'm not copping good, not at all, so I have too stop what I have been doing to myself, or its not going to be OK,not at all she said. Anyways and then she told me that, me and her had too talk too my mom about something and then we got done talking too my mom and then me and her talked about the stuff that her and my mom was talking about and we were talking about my sexual abuse by Tom Hovatt when i lived in Price,UT, it was very hard talking too her about that so she helped me tell her about it. So then I finally got done talking to her about it, and then she took me to my mommy, well me and my mom waited for Dr.Everett, and we had too tell her about my Blood Pressure was , well when i do an activity my blood pressure gos really low, and my heart rate stays the same. And so Dr.Everett told me that i had to wear a heart monitor for 24 Hours whicth is called a Holter Moniter. Well so than me and mom went and refilled all of my Medicine if it had too be refilled,and if so we went back up and picked up all of my refiled Medicine up. . So we then we finally got all done with the Hospital and stuff, so we then left the Hospital. I also then took my afternoon Medicine. So we then we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner, and then I started on my Homework that is going too be due in like a day or three but I'm not quit shore really, but i really didn't get it all done so I'm going too finish it tomorrow, oh and then I wacted Hanna Montana, and then I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep.Zzzzzz

All About Today Wicth Is Not A Clinic Day And On The Weekend.

2008-12-06T00:00:00.000-08:00

OK well as all you all know that today it is Monday and well today was not Clinic, cause I now I have no more clinic day's on Monday's remember, and how great my Echo's, have been looking EKG, and my Blood Work also. So Shore you all don't for get all of that stuff. Any way's well so me and my mommy woke up, we were kind of late, but not that bad as we usually are well any ways. So we then both got in the shower, and we both got dressed and all ready too go too, well then I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital still, don't forget that ether. So then we left our house and went to the Hospital Primary Children's Hospital. Well and now remember theirs no more Clinic Day's on Monday's, well so now on Monday's I still only go see Julian Smith and Dr.Jeramey Hendrick's too, well nothing has changed from that. So I waited for Dr.Hendricks and Dr.Smith too, so then we started talking. My Psychologist Dr.Jeremy Hendricks, and Dr.Julian Smith was there and they were really worried about all of the stuff we have been talking about. They didn't know if it was a Behavioral thing, or a way just to cope. But we think why I do it, its just do it cause it is a good very good coping strategy, and it helps but its not what people do in life, and so we are now working on trying to find out what other coping skills well help, then they said that "If this never stops that I well have go back too the Residential Treatment Center for me to get help, But we are working it out and trying too find new coping skills, so that's a good thing. Well so ya any way's so me and Julian was not done talking, but Dr.Hendrick's was. well me and Julian we were talking and stuff like that. So we both finally got all done talking, and we went got my mom. Well so than me and mom went and refilled all of my Medicine if it had too be refilled,and if so we went back up and picked up all of my refiled Medicine up. . So we then we finally got all done with the Hospital and stuff, so we then left the Hospital. I also then took my afternoon Medicine. So we then we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner, and then I started on my Homework that is going too be due in like a day or three but I'm not quit shore really, but i really didn't get it all done so I'm going too finish it tomorrow, oh and me and my mom saw twilight on Friday and it was a very,very good great movie every, i cant wait till the next one,well and we went . I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep.Zzzzzz

Today Was Clinic On Thursday And Some Fun Things Too.

2008-12-04T12:17:00.000-08:00

OK now this is what happened today on Thursday's Clinic Day, which is today. So me and my mommy woke up, we were late, so any ways. So I and her got in the shower, and we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done then I took my Medicine wicth is my Prograf, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down. So then I waited for Dr. Julian Smith, and I talked too her a lot about stuff that's been happening in my horrible, sad Life, well then me and her talked about some other bad stuff too, stuff like that I would might have too goo back too the Residential Treatment Center too get some more help, cause I having a hard time and I'm not copping good, not at all, so I have too stop what I have been doing to myself, or its not going to be OK,not at all she said. Anyways and then she told me that, me and her had too talk too my mom about something me and her talked about on Monday, which is about Jewels my niece. So we did do that and it went pretty good and well, so know we are just going too make shore that Jewels is OK now. So we finally got all done with the Hospital, so we then left the Hospital. Well then me, my mommy and Jewels went too lunch at Einstein Bagels and had lunch, it was really good, I also took my Medicine. So we went home, my Grandma and Grandpa, came too visit, and then they also had too take Jewels back too Price. :( I then came onto the computer and wacthed some TV too. So I took my 6:00 pm Medicine and then I had to finished my Homework so I did it and I got it all done, because I have home school tomorrow. So finally then I finally got all of my stuff done so the rest of the night I had the time with my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner. I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and then I wacthed Miley Cyrus On Christmas At Rockefeller, Barbara Walter's 10 Most Fascinating People with Miley Cyrus, and last Grey's Anatomy. Well so and I finally got ready for bed and we finally went to sleep. Zzzzzz

Theis Is What Happened Today Monday And Some Of The Stuff That Happened During The Weekend

2008-11-30T16:06:00.000-08:00

Will everyone I'm so,so sorry for not blogging for the past few days. Well today it is Monday and well today was not Clinic, cause I now I have no more clinic day's on Monday's, cause how good my Heart Cath was few weeks ago on that Friday, and how great my Echo, EKG, Blood Work looked, and how great and good that I'm taking my Medicine, how great that I'm taking them on time and all of that other stuff too, so don't for get all of that. Any way's well so me and my mommy woke up, we were late, so any ways. So we got in the shower, and we both got dressed and all ready too go, I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital. So then we left our house and went to the Hospital Primary Children's Hospital. Well and now remember theirs no more Clinic Day's on Monday's, well so now on Monday's I only go see Julian Smith and Dr.Jeramey Hendrick's and I got a iTunes gift card from for doing what he told to do, and also on Thursday's, after Clinic on Thursday's. Will and just too let every one know that I'm working on my heart story. So just too let you guys know, exspecially all of my heart friends. And also Happy late Thanksgiving, and Merry Christmas also too.

My Psychologist Dr.Jeremy Hendricks, and Dr.Julian Smith was there and they were really worried about all of the stuff we have been talking about. They didn't know if it was a Behavioral thing, or a way just to cope. But we think why I do it, its just do it cause it is a good very good coping strategy, and it helps but its not what people do in life, and so we are now working on trying to find out what other coping skills well help, then they said that "If this never stops that I well have go back too the Residential Treatment Center for me to get help, But we are working it out and trying too find new coping skills, so that's a good thing.

Well so ya any way's so me and Julian and Dr.Hendrick's well we finally got done talking about everything, and so then me and Julian then went and went too go find my Mom. OK so then me and my mom left Primary Children's and went and had lunch, then she dropped me off at home and well i took my medicine, then came on the Computer and blogged, and then I had to finished my Homework so I didn't get it all done, but I got most of it done, but I guess I well finish the rest of It tomorrow.

So finally then I finally got all of my stuff done so then the rest of the night I had the time with my twin sister, my big brother Lamar, and my wonderful Mom, we had some fun too, cause see know yesterday me and my mom drove down too Provo and we went and picked up my niece, well her name Jewels and she is going too be with us for a while and that's going to be so much fun, also she is coming with me too my apartments her at the Hospital so that's very cool too. So then we all had A very,very,very good wonderful dinner. I then took my wonderful nice hot bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and then I wacthed some Hannah Montana and Private Practice. Well so and I finally got ready for bed and we finally went to sleep. Zzzzzz

All About My Clinic Day And The Weekend Pluse Thanksgiving Day Too

2008-11-28T22:32:00.000-08:00

Will everyone I'm so sorry for not blogging for the past few days. Well, just to let you all know,that we just sill have been really, really, really busy again. OK now this is what happened on Thursday's Clinic Day and well just to let you all guys know that I kinda of forgot about what every thing that happened on last Monday . So me and my mommy woke up, we were late, so any ways. So I and her got in the shower, and we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down. So then I only waited for Dr.Hendrick's instead of both of then Dr.Julian Smith and then I talked too him about a lot about stuff that's been happening in my horrible, sad Life, well then me and Hendrick's talked about some other bad stuff too, stuff like that I would might have too goo back too the Residential Treatment Center too get some more help, anyways and then he told me that Dr.Julian Smith wasn't there because of Thanksgiving, and Thanksgiving break once again. So we finally got all done with the Hospital. So we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner. I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep.Zzzzzz Well ya anyways and also about my thanksgiving it was alot of fun cause every thing was very good, and also the other great thing is that is that I got too wacth one of my Favorite TV shows wicth is Greys Anatomy and also Hannah Montana too. Well and just to let every one know that I'm working on my Heart Story, so just too let every one know that. Happy Thanksgiving And Also Merry Christmas Too.

All About My Thursday's Clinic Day Throw Out The Weekend

2008-11-21T23:25:00.000-08:00

Will everyone I'm so sorry for not blogging for the past few days. Well, just to let you all know,that we just sill have been really, really, really busy again. OK now this is what happened on Thursday's Clinic Day. So me and my mommy woke up, we were late, so any ways. So I and her got in the shower, and we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down. So then I waited for Dr. Julian Smith, and I talked too her a lot about stuff that's been happening in my horrible, sad Life, well then me and her talked about some other bad stuff too, stuff like that I would might have too goo back too the Residential Treatment Center too get some more help, anyways and then she told me that well next week she won't be there at the hospital because of the Thanksgiving break, well then she said that I'm only going too see Dr.Hendricks, Jeramey Hendricks, so I'm only going too see Hendricks instead of both of them.. Then we finally got done talking and so then me and mom waited for Dr. Everett, we had too see Dr.Noland instead, and that sucks cause my mom had too talk too her about some stuff. And then he came in and we all talked about everything, and my Medicine, we got it all organized them with the Doctor, So me and my mom told Dr.Norland about my hand cause I guess the doctors hurtted all of my nerves in my right hand, but it was a big mistake, well so then we finally got out of Cardiology, then I finally got too see all of my Heart babies first Kadence, then Daxton and Teagon, and last Gracie but now she's in the hospital she got admitted on Thursday after noon when all of us had our clinic apartments me and my heart buddy's. So me and my Mommy went up stars too the third floor and went too go see some of my best friend nurse's, and also Annette she is a nurse too up stars too, but to me she's a very trusting friend kinda like my second mom, that's how much I love her. Well so than me and mom went and refilled all of my Medicine, and we went back up and picked it all of my Medicine up. So we finally got all done with the Hospital. So we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner. I took my bath and also took all of my Medication, and then I checked my Blood Pressure andTemperature, and I got ready for bed and we finally went to sleep.Zzzzzz

All About My Monday After The Heart Cath On Friday

2008-11-17T09:32:00.000-08:00

Well today it is Monday and well today was not Clinic, cause I now I have no more clinic day's on Monday's, cause how good my Heart Cath was on Friday, and how great my Echo, EKG, Blood Work looked, and how great and good that I'm taking my Medicine, how great that I'm taking them on time and all of that other stuff too. Any way's well so me and my mommy woke up, we were late, so any ways. So we got in the shower, and we both got dressed and all ready too go, I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital. So then we left our house and went to the Hospital Primary Children's Hospital. Well and now remember theirs no more Clinic Day's on Monday's, well so now on Monday's I only go see Julian Smith and Dr.Jeramey Hendrick's, and also on Thursday's, after Clinic on Thursday's. My Psychologist Dr.JeremyHendricks, and Dr.Julian Smith was there and they were really worried about all of the stuff we have been talking about. They didn't know if it was a Behavioral thing, or a way just to cope. But we think why I do it, its just a good coping strategy, and it helps but its not what people do in life, and so we are now working on trying to find out what other coping skills well help, then they said that "If this never stops that I well have go back too the ResidentialTreatment Center for me to get help, But we are working it out and trying too find new coping skills, so that's a good thing. Well so ya any way's so me and Julian and Dr.Hendrick's well we finally got done talking about everything, and so then me and Julian then went and went too go find my Mom. OK so then me and my mom left Primary Children's and went and had lunch, then she dropped me off at home and well i took my medicine, then came on the Computer and blogged, then I had Occupational Therapy, and then I had to finished my Homework so I did it and I got it all done. So finally then I finally got all of my stuff done so the rest of the night I had the time with my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner. I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and then I wacthed Hannah Montana and Grey's Anatomy. Well so and I finally got ready for bed and we finally went to sleep. Zzzzzz

The New Plan For Now

2008-11-15T18:15:00.000-08:00

Well now the new plan so far is that we go to Clinic every Thursday's no more Monday's, so I only have too go too Clinic once a week not twice a week any more. So on my Clinic day's which is now only Thursday's, so on Thursday's first I check-in and then I get my blood work, Echo, EKG and then my check-up all done and all of that other stuff done too. So and then I go and see Julian Smith, but I still go too the Hospital on Monday's just too go see Julian Smith and Dr. Jeramey Hendricks, cause I have too see them twice a week. And then me and my mom go get my Medicine from the Pharmacy every Thursday, now I only have Heart Cath's every mounth instead of every Friday. Also I still have Physical Therapy, and Occupational Therapy, oh and also I still have home school twice a week. I also take my Medicine every Morning and Night. This plane is going too be the Plan for A while, well that's all I know for Know, but when I get new thing's that I have too do for my new plan I well just add it. OK well that's all I think I know for now.

My Heart Cath Form Yesterday

2008-11-15T09:24:00.000-08:00

Well I had my Heart Cath yesterday, and It went pretty good, well I went in at 11:00 in the morning. And then Again I had my bad episode again, I was asleep for a very long, long, long , long, long time, but the very great, great, great, great, great thing was I didn't have to stay over night at the Hospital, well I woke up about 6:30 at night and then we had to wait for the Cardiologist, too come talk to us about the Heart Cath, and about the X- Ray they had too do, well I guess they did the X- Ray while i was having my bad sleeping Episode. Well any way's we waited, and waited, and waited, and then finally my Cardiologist came in who withe is Dr.Everett. And well she came in and told us that the Heart Cath looked great and that we had too only go too Clinic once a week, instead of twice a week, and my mom was kind of worried so she asked why, and Dr.Everett said because Megan has done so great and how good her Heart Cath's, and Echo's look. So my mom said well that's good. So then we left the Heat Cath Lab, So then well it was so cool that well me and my mom went to Toco Bell and got us A toco, then we went too basket Robbin's an got us each a scoop of ice cream, and then we buyed us a ice cream cake and we wrote on the cake Megan's Special Day. Well so then we got home, and I finished eating my toco and then I took a hot nice bath, and I went in and wacthed Gery's Anatomy, then went on the computer, and then I also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed I been having alot of pain in my Chest for some wired reason and my hand has been num sence the Heart Cath which was yesterday well and I finally went to sleep. Zzzzzzz

I'm Really Sick And We Had To Have Clinic Today

2008-11-13T12:29:00.000-08:00

Well today I was not supposed to go too clinic, cause of that i have a heart cath tomorrow , well anyways i have kind of been sick like last night i was so pal that you actually couldn't see my lips, and stuff like that, under my eyes were so dark its like what i looked like when i as in the hospital waiting for my new heart. so my mom called the doctor yesterday and she told us to come in tomorrow and we well just make it like a regular Thursday's Clinic Day. So me and my mommy woke up, we were late, so any ways. So I and her got in the shower, and we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done, then we went to Cardiology, so they got me ready and I got my Echo and EKG done. So they checked every thing, and they said that every thing looks pretty good, but they think it mite be a sign of Rejection. OK and well my Heart Cath is tomorrow which is a Friday, So I'm the third case in, which is kind of hard on me, cause usually I don't wake up for a very, very, very, very long time, and that scares Me and my mom, even the Doctor's too. Cause they don't know if it's my Heart or me just copping the I cope, know see most of the times when I have Heart Cath's I usually have too stay over night at the Hospital so I really don't know. So ya anyways I have been kind of sick and still sick, so my mom is very worried. So then I and my mom finally got done and went home, and I had Physical therapy. And then me, my mom, my sister Jacqueline, and my big brother Lamar, well we went on a horse carriage down town it was fun but we all got very cold. and then we got home and ate dinner and then i got ready for my cath, i got all my things i need to take with me. So i got that all done and wacth Grey"s Anatomy it's one of my favorite shows. well so i took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep. Zzzzzzz

My Sweet Heart Baby Kaidence

2008-11-12T15:07:00.000-08:00

My little Beautiful Heart Baby Kaidence has been having another hard little time in her wonderful beautiful life. Know her wonderful, beautiful new perfect heart is in Rejection. Every one please pray for my little Heart Friend she really needs it and especially her Mom and family. Kaidence is a very strong little girl and if she can go throw all the stuff that happened in her past, and made it then she can go throw this Rejection, and I know she is a very, very, very strong little girl. And Shauntelle please tell my sweet little Kaidence that I love her very much, And that I'm very sorry. But if you really want to know that I know she well make it and she is a very, very strong little girl and i love her very much, so every one please pray for her please, and she is really sick.

My Heart Babies

2008-11-11T14:16:00.000-08:00

Today Was Clinic On Monday

2008-11-10T12:35:00.000-08:00

This Is My Heart Buddy

DAXTON

Today was Monday, which is A Clinic Day. So me and my mommy woke up, we were late, so any ways. So we got in the shower, and we both got dressed and all ready too go, I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down. So then I waited for Dr.Julian Smith and Dr.Jeremy Hendricks, and talked to them about A lot of stuff that's been happening in my Life, and then we got done talking and so then me and mom waited for Dr.Norland. And then he came in and we all talked about everything, and my Medicine, we got it all organized them with the Doctor. And then he checked me like listened to my Heart and stuff like that, so then I told him about whats been happening with my shoulder. And so he's kind of worried about that. So he just said that we well keep a eye on it. So OK and my Heart Cath is this coming Friday, So I'm the third case, which is kind of hard on me, cause usually I don't wake up for a very, very, very, very long time, and that scares Me and my mom, even the Doctor's too. Cause they don't know if it's my Heart or me just copping the I cope, know see most of the times when I have Heart Cath's I usually have too stay over night at the Hospital so I really don't know. Anyways so we finally got all done with the Hospital, and we did stop back in Clinic and went and saw on of my Heart Buddy's, his name is Daxton, and he's such a sweetheart. So we went home and spent the rest of the day at home with my wonderful family, my twin sister Jacqueline, my big brother Lamar, and my wonderful Mom, so we had dinner, I finished my Homework, cause I have Home School Tomorrow and the next day too. So then I got too Watch Hannah Montana, and a movie too. I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep. Zzzzzzz

For What Is Happing Tomorrow Which Is A Sunday

2008-11-08T15:20:00.000-08:00

This Is Me And Jewels

Well tomorrow, me and my Family are going down to Price again, down in Carbon County, and we well be going to go see my Niece Jewels, and my wonderful hard,stressful family. It's mostly for Jewels, it's her wonderful Birthday Party and she's turning Three years old. We well have Lot's of fun I hope, and have some very mummy, mummy wonderful cake, I can't wait too see her cause, she misses me so much and she well be so, so, so, so happy and excited. Well we are going to wake up in the morning and me,my twin sister Jacqueline, my brother Lamar, and my mom are going to get up in the morning, we well all get dressed and get ready to leave and I well take my Medicine and all of that stuff, then we well start on the go to Price. I well be in Price till about late afternoon, we well drive back up to Salt Lake and well spend the rest of the day home in Salt lake and I can't wait till we get back cause it's the next new episode of Hanna Montana, and I love Hanna Montana, and Miley Cyrus, so I can't wait it well be Lot's of fun. And just to let you all know I well try to Blog when I get home, but it deepens if I have some time, and how things are going, so know I'm going to get in bed so I can wake up early in the morning so I have enough time to do every thing and get everything done Monday morning, and most very, very, very unimportant my Health stuff that I have to do every morning, So ya well now I'm going to take my Medicine and stuff. well have sweet dreams and good night. Zzzzzzz

Me When I Was In The Hospitial

2008-11-07T13:59:00.000-08:00

This Is What Has Been Going On For Last Few Day's

2008-11-07T13:49:00.000-08:00

Will everyone I'm so sorry for not blogging for the past few days. Well, just to let you all know,that we just sill have been really, really, really busy again, and I got my new glasses well I think most of you guys already know, well I have been wearing sense I got them, and I look so cute in them, and guess what I look adorable in them well It's my first time wearing glasses, and hay It's not as bad then I thought It was. Well, its kind of fun, cause you It's a new thing too me. Well, one pear is like a pretty dark brown color, and my other pear is pink and gray, my mom picked those ones out, and I look so, so, so, so, so, so, very, very, very, very cute in both pear's of my glasses. OK now I Well tell you guys about Thursday's appointment. OK now this is what happened on Thursday's Clinic Day. So me and my mommy woke up, we were late, so any ways. So I and her got in the shower, and we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down. So then I waited for Dr. Julian Smith, and I talked too her a lot about stuff that's been happening in my horrible, sad Life, and then we got done talking and so then me and mom waited for Dr. Everett. And then she came in and we all talked about everything, and my Medicine, we got it all organized them with the Doctor, oh and just to let you know that next Friday is my next Heart Cath. So then we got all done with Clinic, finally, and then me and my mommy then went to the Pharmacy and refilled all of my Medicine, and then we went up to the Third Floor and saw Annette, a nurse that is really close to me, and I love her so much, she is a very special person to me well any ways. So we finally got all done with the Hospital. So we went home and spent the rest of the day at home with my wonderful family, my twin sister Jacqueline, my big brother Lamar, and my wonderful Mom, so we had dinner. I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep. Zzzzzzz

Me When I Was In The Hospitial

2008-11-05T08:51:00.000-08:00

Me When I Was In The Hospitial

2008-11-04T15:41:00.000-08:00

I'm So Sorry For Not Blogging

2008-11-01T21:25:00.000-07:00

Will everyone I'm so sorry for not blogging for the past few days. Well just to let you all know,that we just have been really, really, really busy, and I got my new glasses, I cant wait too wear them, but I do hope that I well look cute in them, and guess what I look adorable in them, one pear is like a pretty dark, brown color, and my other pear is pink and gray, my mom picked those ones out, and I look so, so, so, so, so, so, very, very, very, very cute. OK now I Well tell you guys about Monday's appointment. OK now Mondays is A Clinic Day. So me and my mommy woke up, we were late, so any ways. So we got in the shower, and we both got dressed and all ready too go, I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down. So then I waited for Dr.Julian Smith and Dr.Jeremy Hendricks, and talked to them about A lot of stuff that's been happening in my Life, and then we got done talking and so then me and mom waited for Dr.Everett. And then she came in and we all talked about everything, and my Medicine, we got it all organized them with the Doctor. So then we got all done with Clinic, finally, and then me and my mommy got my new Medication for my face, and we also refilled all of my medicine. So we finally got all done with the Hospital. So we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner. I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep. Zzzzzz

For What Is Happing Tomorrow Which Is A Sunday

2008-10-25T22:02:00.000-07:00

Well tomorrow, me and my Family are going down to Price, in Carbon County, to go and see my wonderful hard,stressing family. It's for my Grandpa, it's his wonderful Birthday. We are all going to have a great breakfast, and lunch, and some very mummy, mummy wonderful cake, I can't wait. Well we are going to wake up in the morning and me,my twin sister Jacqueline, my brother Lamar, and my mom are going to get up in the morning, we well all get dressed and get ready to leave and I well take my Medicine and all of that stuff, then we well start on the go to Price. I well be in Price till about late afternoon, we well drive back up to Salt Lake and well spend the rest of the day home in Salt lake. And just to let you all know I well try to Blog when I get home, but it deepens if I have some time, and how things are going, so know I'm going to get in bed so I can wake up early in the morning so I have enough time to do every thing, and most very, very, very inportant my Health stuff that I have to do every morning, So ya well have sweet dreams and good night. Zzzzzzz

Well I'am Going To start From Last Monday To Today

2008-10-24T20:22:00.000-07:00

Well this is were I'm going to start, starting at last Monday. Mondays is a clinic day. So Me and my mom woke up, we got ready and I took my medicine, then we left and went to the Hospital.

I first got my my blood work done, then i went and saw and talked to Dr. Hendricks, and then we went to Cardiology, they got me ready and i got my echo and all of that stuff done, then me and my mom waited for Dr.Everett. She came in and told us that my Heart Cath went really good and my Echo Results were great. And then she said that know I only need one every month in stead of every Friday, I was so happy. Then she said that I don't need my feeding tube any more so we got that out, it was so,so,so,so,so,so,so,so,so,so exciting. And then we went and saw the eye Doctor and i have to wear glasses know. So me and my mom are going to get them tomorrow, and i might get pink or purple ones cause those are my favorite colors. So we went home and spent the rest of the day at home with my twin sister Jacqueline, and my big brother Lamar, we had dinner, and I took my Medicine, then every one got ready for bed, and then we went to bed, and we all went to sleep. Oh ya and just to let you all know that I finally got my own computer hoked up at home so know I can blog, when I have time, and all about my Heart Transplant I'm going to start writing that part, I get all of my pictures from my Transplant, when I can get them into my computer, and once I get the whole story in the order my Heart Transplant went, it might take a while to get it all done, and just to let you know that I'm so,so,so,so,so sorry I haven't done that, Well know I'm taking all of my Medicine and get ready for bed, and go too bed, and go to sleep.

My Heart Cath

2008-10-23T17:16:00.000-07:00

Well I had my Heart Cath Last Friday, and It went pretty good, well I went in at 8:00 in the morning. And then Again I had my bad episode again, I was asleep for a very long, long, long , long, long time, but the good thing was that they didn't have to put in a stunt, and they thought they were going to cause of my last Heart Cath in when I was in the Hospital. And the other very great thing was I didn't have to stay over night at the Hospital, well I woke up about 8:30 at night and then we left the Heat Cath Lab, and the very cool thing was I asked the Nurse if I could go home with my I.V. and take it out by myself, and she said yes shore you can, it was so cool. Well then we went back up to the 3rd floor and said hi to all of my friend's the sweet Nurses. Well we went to Dinner at a Greek Restaurant., it was pretty good, so we then went home. And I took all of my Medicine, and my mom got my feed's ready, we all got ready for bed and went to sleep.Zzzzz

The Plan For Everything

2008-10-23T17:05:00.000-07:00

Well the plan is that we go to Clinic every Monday and Thursday, I get my blood work,Echo, and my check-up, and then I go and see Julian Smith and Hendricks. And then me and my mom go get my Medicine from the Pharmacy, I have Heart Cath's every Friday. Also I still have Physical Therapy, Occupational Therapy, and still home school every week. I take my Medicine every Morning and Night, and have my feeds at night. That's all that I think I know of.

On That First Monday

2008-10-22T12:00:00.000-07:00

Well first of all I go to Clinic every Monday and Thursday, so that Monday morning I went in to Clinic and got my Blood Draw,Echo, and Checking every thing and see how my Heart is, and it was pretty good and got all of my Medicine, oh also that morning I took all of my Medicine, and that's a good thing too. And then I went and saw and talked to Julian Smith and Dr. Hendricks. Me and my mom went too the 3rd The Children's Surgical Unit, too say hi too all of my friend's the wonderful Nurses. And then we went to the Pharmacy and went and picked up my medicine. then we went home and made dinner and we all got ready for bed and my mom got my feeds ready and then we all went to sleep.

Finally Back Home Again

2008-10-22T11:24:00.000-07:00

Well when I got home on that Saturday, I then went too my new Apartment. And when I walked in, I was so shocked how small it was, but if you really want too know. It was like home, and was so much better then the Hospital. And so I got settled in and so did my mom. That night me and my mom was getting all of my medicine together, and oh my gosh it was so much medicine that we couldn't believe it. So we got it all together, and I was going too bathroom to get ready for Bed and then I put my medicine on my face, and flushed my NG tube. And went in and watched some TV, and then my mom said that my Family was coming up that night, which is my Grandma, Grandpa, Aunt, Niece Jewels, and also my one brother Lamar and my Twin sister Jacqueline. So then I went into the kicthen and took my medicine, gave me my Prednosone down my NG tube, and flushed it. And then my Family arrived, and so we talked and some Family time, and then everyone was getting to go to Bed cause it was pretty late. So I got in bed and my mom got my feeds ready and hoked them up in my NG tube, and we all went to bed and went to sleep. Zzzzzzzzz

Getting Admitied Again

2008-10-21T11:31:00.000-07:00

Well in the ER after the Doctor came in the room she said to my mom that they were putting me back in the Hospital on the third floor (CSU). So they can see and find out what was wrong and see if my heart was still a good heart for me. And so I was on the third floor, and I was there for a week and three days. And while I was there I got pretty sick and I had alot of my Sleeping Episodes and not waking up. Well when I had those Episodes I wouldn't wake up and everyone were so scared and confused and really alot was my mom she was very scared and sad, and really confused too she just wanted me to wake up, she thought she had lost me cause they didn't know if it was my heart or if it was that I just had to go too sleep to get all the hard and sad things to go away, and for me just to take my rest and be asleep and at least take a break from everything. Cause I think theis is why I do it, but I'm not shore if that's why cause its really out of my control and also, My Psychologist Dr.Jeremy Hendricks, and Dr.Julian Smith was there and they were really worried. They didn't know if it was a Behavioral thing, or a way just to cope. But we think why I do it, its just a good coping straitey, and it helps but its not what people do in life, and so we are now working on trying to find out what other coping skills well help, then they said that "If this never stops that I well have go back too the Residential Treatment Center for me to get help, But we are working it out and trying too find new coping skills, so that's a good thing. And so it was hard the second time too, its just that the first time they let me go home to early cause i was not strong enough to do anything and also my was so scared she didn't know really what to do to help me, at the time. And we got ever thing in order and we chanced the way to give my feeds and all the other stuff, so that was really good, And then I went to my second new home which is The Ronald McDonald Apartments, I went home on I was September 20, or the 27 of September, on a Saturday I'm not shore, but one of those days. It was I just left the Hospital too soon the first time.Thats all. And that's it that happened.

Me Back In The Hospitial

2008-10-01T10:56:00.000-07:00

I'm so sorry that I haven't been Bloging It's just that Lot's of Bad things been happing, and here is what happened. Well I left the Hospital on a Wednesday I think it was like two week's ago, and went home to the Ronald McDonald Home, and didn't go home with the PICC LINE. But the only thing I went home with is my Feeds and Feeding Tube, I still have to have that. Well when I left the Hospital I was really week, but the Doctor's thought I was really strong cause how good my New Heart was doing. So that night the Home Health Care had to come at 6:00 p.m. They didn't come till 10:00 and my mom called them at 7:00 and the nurse said to my mom that she could bush all of my Feeds with a Syringe, and my mom said to the nurse that my feeds had to go in the only hour the the Doctor's told us to. And she said no it well be fine, so my mom did what the nurse told her to do, and then I got really sick to my tummy and I was plugged up in my tummy wicth is not a good thing. Well then,I don't know if it was Wednesday Night or Thursday Night, I asked my mom if I could take a Bath and she said shure so she made my Bath Tub and she was helping me in and i got in but i was standing up, and my mom said "So Megan how can we sit you down in the bath tub, How did the nurse do it ?" And i said " Mommy I've never been in a bath tub yet." My mom said I think we can do this" so we started sitting down and then I slipped or Fell down and the my mommy fell. I'm not shure if i fell or slipped. Well I was screaming and crying cause I tired to caucth my self and other thing's like hurting my New Heart and Hurting my Chest also. So my mom got me out of the tub and helped me on too the bed, so she went to get my Blood Pressure Testing thing and my Blood Pressure was really High exceptionally my Heart Rate. So she looked at me and saw that I was in a lot of Pain and was Breathing really fast. So she called the Primary Children's Hospital Operator, and she asked him for the Heart Transplant Coordinator. And the Operator asked My Mom what the problem was and she kept telling him that I'm a Heart Transplant Patient, And so he just wouldn't lisson to my mom so she just asked him "What schould I do". And he said " Just take her to the EMERGENCY Room, so we drove to Primary Children"s Hospital into the Emergency Department. And went in, and my Mom told them what happend, and they checked my Blood Pressure, Temperature, and all the other things they do. So then they did that, and my Mom let them know that I was a Heart Transplant Patient, and that I couldn't be with all of the other kid's. So the Nurse put me in a different room so I was the only Patient in that certain room with my mom and sister. And I was in alot of pain, and my mom told them that I was in alot of pain, and that I needed some Pain Medicine, so we waited and waited, and then they finally got me some. So then they did some X-Ray test of my sholder and chest, so then we went back into the Room and A Doctor came in and told my mom that they were having A hard time figuring out what is really wrong with me, And then she said....

Getting Ready To Leave The Hospitial

2008-09-15T21:36:00.001-07:00

Well today the doctor's came in and said Megan you are leaving the Hospital to go to the Ronald House on Wednesday. And I was so proud, well then the Doctors said now you are going to be on a lot of Medicine and you have to make shore you take on time or you well get really sick and you might end up in PICU. So they gave me this binder that shows my times when to take my Medicine, and the Doctor's said I well be going home with my PIC LINE cause I had to be on some IV Medication, but then they changed their mind about that. It's really frustrating cause they keep changing every thing, but they told me not to be worried about it. But, I still worried alot it's just that's the kind of person I'am. Well Holly which is the Child Specialist is helping me make a Scedurale for when I get home, Cause It's for Medicines, OT, PT, Home School, and Home Health. And It really sucks cause I have to go home with a Feeding Tube, which is going to be really hard, cause the way my Feeds are is really confusing. But the good thing is that I know how to work the Feeding Pump so might not be too bad. And I'm going to go home with a Wheel Chair too. And lot's of other things too, Well on Friday I had a Heart Cath, and it didn't go good It was really scary cause I wouldn't wake up and I guess I was not Breathing and some other stuff too, but know I'm ok. And one More good news is Daxton got his Breathing Tube out, I'm so happy for him. Well I have to go and I well Blog later, I might not Blog till I leave the Hospital cause I'm going to be really busy, so I well Blog when I get every thing done and go to the Ronald House. So ya see ya later.

I'm Going Home To The Ronald House

2008-09-15T14:10:00.000-07:00

Well I'm so sorry I haven't Blogged for a while, it's just I have been getting ready too go home at the Ronald House. Cause as you know I got my new Heart. Well now I have to go to PT, which I hate, So I well Blog latter see ya.

Daxton's New Heart

2008-09-12T20:29:00.000-07:00

Daxton's New Heart Transplant

Today is such a great day for one family and a heartbreaking day for another. I received a phone call about 2:35 this morning to tell me that Daxton has a heart. Unfortunately my phone ringer was off and I did not know. So I saw the message first thing this morning and was able to run up and see Daxton. I am heading up again in a few to sit in the waiting room with his family. I am so grateful for this beautiful miracle. Daxton melts my heart and he has the sweetest family. We are so happy for you DAXTON!!! We will continue our prayers not only for you and your family but for the family who's heart aches to hold their little angel. Yes he finally got his new heart.

The "Page"

2008-09-07T20:32:00.000-07:00

Megan's Heart transplant pager went off about 10:30 a.m. on September 2, 2008. Emily the transplant coordinator asked me if they could tell her before I got back to the hospital to begin the blood workup... How exciting,,, Driving to the clinic with the emegancy flashers on... Making sure we had our T-Shirts made,(Yellow with the words Be a donor, give someone your heart...on the back a picture of her and the words *Like me*) Dr. Kourtes went to harvest the new heart
Megan wanted to spend most of her time holding Teagan and watching his smile... they bonded very deeply..Finally, they took her to the OR at 7:oo p.m Dr. Kaza was the surgeon that performed the transplant....Megan went to sleep at 7:20 and the first chest incision was at 8:10 the new heart began to beat at 9:55 p.m. Megan was in the PICU and I got to see her at 1:30 a.m September 3, 2008... Up hill from then on..... to be continued tomorrow and up to date. Her mom Paula

Me In The Hospitial

2008-09-01T14:47:00.000-07:00

Me In The Hospitial

2008-09-01T14:45:00.000-07:00

My Heart Story

2008-08-31T11:53:00.000-07:00

Well this all started when I was three years old and I was Diagnosed with cancer (Leukemia). I made it through the Chemo and all, but now 10 years later, they told me I have Cardiomyopathy (and it's a Heart Disorder) from the Chemo Therapy that I received for my Leukemia. In November of 2007 began a new journey for myself and my family... I need a new heart to stay alive. With my family and myself, we decided on working very hard to get me a Heart Transplant. So now I am with my mom at PCMC (Primary Children's Medical Center) in Salt Lake City and on many different medications, waiting for my new life to happen... Well this is how we found out, well me and my family went to Fiesta Fun the one in Saint George and I was walking up some steps to go down the slide.I was going down I guess when I got out of the slide I guess I was getting dissy. Stuff like that and I all most passed out so my mom thought I was having a heart attack so the next day my doctor, Dr. Nygard he did a EKG and he realised that my heart went kind of funny so he was really worried so he ordered a Echo Cardiogram and that's when they take pictures of my heart. So another doctor looked at the pictures, Dr.Etherigde, and she told my mom that there might be something wrong with my heart. So she said we will have to take some more test and that they can only do those test up in Salt Lake City at PCMC. So the next day or two, we drove up to Salt Lake and we got to the hospital to see this heart Doctor, Dr. Everett. And did some more test, she came in and said I think she has a heart condition and that the left side of my heart is really sick. So then we made lots more appointments and so while we went up to see the doctor about till December. Then Dr.Everett came in and said that Megan needs a Heart Transplant Cause the left side of her heart is enlarged and that it's really weak and it's working too hard that it gets really weak and tired like it wants to stop. So they put me on lot's of Heart Medication, they did all the tests so they could put me on the list, but when they did the Cath Lab Test and after they finished that small surgery I wouldn't wake up so it scared everyone especially my family. The nurses said they couldn't do anything that I would not wake up with no response, so my mom was really worried so she called the Cardiologist down in Saint George Dr.Millar and she asked him why I wouldn't wake up and he said my Metabolism was slowed down cause my Heart was so week that it take a long time to get out of my system so I was asleep for about four hours with no response, so then I finally woke up and then that night I left the hospital. The next day I had to do more tests for my heart. Then a couple weeks later we finally got the pager and then I had to wear this life vest which it's a vest that has a Defibrillator attached to it that I have to wear 24/7, but I can only take it off for a half of an hour to take a shower and every week we have to down lode it to the hospital so the doctor's and it will go off if my heart has to many V TAKS in a row. So then every week we drove up to Salt Lake for tests. So then on July 12, Saturday I got really sick so a couple days later I went to see my Doctor and so he did some small tests and that night he said to my mom that I was going to be life flighted up to Primary Children's Medical Center so they flew us up there and we got there about at midnight. And the next morning Dr.Everett said that they are taking me to the ICU, so they took me to the ICU cause my heart had some problems that night so I stayed in the ICU for about four days and I was really sick and they had to put a feeding tube in me and some water in my IV, but then they finally put me on the 3rd floor and then I stayed there for a couple of days, and then I went back down for another reason, and then back down to get a pic line in, but the first time it didn't work cause they gave me the wrong medicine but the second time worked but they had to put me completely asleep. And then I was moved back up to the floor, and the last time I went to the ICU was cause when I was on the floor I was having a stomach ache so they gave me some medicine and some oxygen, and I went to sleep. So the nurse came in and said Megan Megan wake up and she thought well she's just still asleep, so they kept coming in and then they finally knew that I was not responding so they tried to wake me up so then they took me down to the ICU, and tried to wake me up but I just wouldn't wake up I was asleep for a very long time so then they were starting to put in a Breathing Tube but then I finally woke up and I was on alot of oxygen and then they put me on Milrinone a heart Medicine that helps my heart pump. So I stayed in the ICU for a couples of days and then they finally put me back on the floor, and I have been on the floor for about two weeks and they put me in Physical Therapy and Occupational Therapy, I had casts on my feet cause I had drop foot but then I finally got them off yesterday I had them on for three weeks, I have gotten sick a couple of times, and we almost had a heart twice, but one of them was a false alarm and the other was that the heart was to damaged. So ya well my heart is not better and I still have a feeding tube, lots of IV's with my heart Medicine to keep me alive and my heart is getting more sick every day, and now we are just waiting.

MY NEW BLOG!!!

2008-08-26T10:30:00.000-07:00

Hey everyone, Welcome to my new blog! I wanted to have a way so that I could keep everyone updated on me as I wait for my new heart. Pass on my address to others and feel free to leave a comment so that I know how you are as well. Stay tuned!!!