Whats happened the last Week....

So Last Friday I got my port plased and Dr. Black got rid of my wort so  I have threre Stiches.. OUCH..... And I have to start Chemo on Friday.

** Update Soon**

HAPPY BRITHDAY THUMPER (Heart)

3 Years Old THUMPER on Friday September 2, 2011.

**Put Up Pictures Of Party When I Can**

‘Perfect’ Biopsy! (Deep exhale…….!)

My Biopsy was Friday on my Thumpers Birthday. they make a small incision in my Leg, and run a catheter down my vessel into Thumper's heart. They retrieve a tissue sample from my right ventricle of her heart……. or several pieces.  They measure the pressures in My heart, and approximate the pressures in the chambers they can’t truly access….. the left side. Then the biopsy tissue is sent to the pathologist, And they called us 7 hours later after the Biopsy and  the results are perfect they are 0 - 1 - 1 which is better than last time cause, last time they were 1- 2 - 2, so that's good.

 

Me In The News...

**LINK**

"Teen tackles chemo, again"

http://www.thespectrum.com/article/20110829/NEWS01/108290320

Was In The Hospitial Last Night

So Yesterday I got really sick , I was throwing up all day Friday, Saturday, and sun day. So we called cardiology, and they told my mom to take me to See doctor Niggard, and he admitted me to the Pediatrics in the hospital, and I had to get Fluids, Potassium, and Glucose. But, today i Fell allot better.

*** UPDATE SOON***

The Only Way From Here Is To Go Up

On May 17th at school, I was starting to get sick to my Stamoach. I couldn't keep my Anti- Rejection Medicane Down, cause I was Throwing Up. By wednesday I was really sick, and we went to the ER in St.George, they were going to send me Home casue they thought I had a Stamach Virious,But my mom kept elling them there was something worng with me , and then finally a doctor did a aultra- sound, and found a llare mass in my abodommen. They told my Mom, and then she statred freaking out and she told them to call Primarys , then they Life Flitted up to Primary's Children's Medical Center that night. 

Thats when Dr.Nicholas met me , I really don't remember cause I was So sick, So all these docotor came in and out eplaining that it had to be taking out, the surgean 

Dr.Rollins wanted to go in and try to take the whole tumor out,but with all my history, the onocolgists wanted to just Biopsey it. I was still too sick to know what was going on and I hurt so bad, so they added me onto surgrrey for the 19th. Dr.Rollins led the surgrey team,began to do a byopsy, when he got in my tummy it looked like he could get the whole thing out so he cutted a bigger 

spot, thats when he found that it was attached to my stamoch, my colun, and my paceruase,so he took the biopsy,then we had to wait for the patholagy report. It was a long wait and it took till the 25 of may to find out what it was and what they could do. 

On the 26th of may in  the evening theytook me into surgrey and found not one mass , but two and they had to take part of my stomach, part pancerous, and pat of my choln 

with the larger mass, and the smaller tumor the had too take part of my jajunmen. They put me in the PICU for 1 day and then the next day back to the 

surgical unit to my favorite nurses and doctors. Dr.Rollins and Dr.Whipple,Dr.Evritt made extra sure I was taken care and nothing wrong could go again. And then I couldn't eat, and they placed alot of PICC LInes cause mine keept getting Infected. And my sweet mom and Brother stayed with me I was on TPN and Lippids for about 2 weeks cause my stamach coulndn't handdle food and they put in a NJ tube. Dr.Rollins came in every day and  explained every thing thats going wrong with me to me and my mom. they couldn't get all the cells of the timor so the oncolagist came in and explained what they could do. With these dismoid masses sometimes surgrey can make them come back faster, sometime chemo can slow them down, but I guess they well always come back. 

They wanted to start me on Chemo as soon as possible, but they wanted me to frist feel better from the surgey, wich didn't happen really fast. they wanted to start me befor I left but i was still to siick, I would better then worse, I could eat ice Chips the i got sick and had pancretitis. So I got to finallyy go home with the NJ tube, PICC LInee and a Cook Drain in my Pancerus on friday the 17th of june , I couldn't real well my mom was afraid to take me home, but with insurance they wouldn't pay for any longer in thee hospitial and the cook drain. I couldn't walk very good and couln't get out of bed alone. we had a hospitial ed in the front room, my mom and brother , and sister had to help me. 

I got stronger every day and was on sosyn antibiotic and tube feedings. By wednesday the 22nd, I was starting to feel strong enogh to walk to the bathroom but still needed help to get of the tolit. I went to doctor nygard in ST'George on thursday but by then i wasn't feeling good. but by sunday 26 of june we were  life flited back up to salt lake. By this time insted of the 2 bacterias i had , i know had 5. So I went to the PICU and had to go to the huntsmen center for some test to place a stent in my pacaraus.I ended back on the 3rd floor but in the green hall (the Medical Unit) and my mom fraked out again, cause I was in the wrog unit, so the but me in the treatment room onn the surical floor. I was reallt sick I still couldn't eat, I was on so much medication, a doctor would come in and said i could eat and then DR.Rollins came in and told me I couldn't.  They still didn't want me to start chemo. I finaly got moved across the hall after 2 weeks to a real room. Jacqueline, Lamar and Micheal helped my mom the whole time.

I then Was Moved to the Rahab Floor (Nero Science Trama Unit), Cause I had to do PT, OT, and Speech Threapy. And I was There For About 3 Weeks.

And I got Stronger and Stronger, I was moved back up to The Surgical Floor. And Then on 8/5/11 on my Blog I Posted:

So.... I'am Still in the Hospitial, and today I had Speech Thearapy, it was Fun, and then I was bored so i Decided to clean my Room, and then i went acrossed the hall andwent and saw my Heart Buddy Kadience, cause she was admited here yesterday at about 5p.m., but she doing good know... :) Bad News....  So two days, ago my surgrey doctor came in and told me i could eat,cause i couldn't eat for 2 mounths,so i ate for the first time and it was really wired. And then about a hour ago my nurse came in and told me I Couldn't eat.... So Know I'm on clear liquids. ________________________________________________________________________________ So I Got to Go Home on Augest 8th ,I was so happy.

Woke Up....

So I woke up about 9:30, and I took my pill and then i Throw up it was awful, But I Still get to go home, so that's good. Im just waiting for my mom to get here, cause she driving up from ST.George.
*** Update Again Soon**

Zzzzz

Going to Bed Packed Some Stuff..
Good night

I Get to go home Tomorrow...

So..... tonight I'm still in the hospital , wacthing greys anatomy, and going to start backing my stuff, cause I'm Board... I well Blog Again after I'm Done and I Just took my Meds.

My Hospitial Activitey

So about an Half of an hour ago i went down and did Tye dye with my hospital Buddy's and we had a party it was alot of friends it was awesome, with Kendra and MiaBella and Cassidy. It was awesome.
**Update Soon**

Megans Video

A Video of me In the Hospitial at Primary Childrens they filmed.
****** HERE"S THE LINK*******


http://marknelsonprodutions.com/clients/youngreviews/index.html

Bad News....

So two days, ago my surgrey doctor came in and told me i could eat,cause i couldn't eat for 2 mounths,so i ate for the first time and it was really wired. And then about a hour ago my nurse came in and told me I Couldn't eat.... So Know I'm on clear liquids.

Still Here...........

So.... I'am Still in the Hospitial, and today I had Speech Thearapy, it was Fun, and then I was bored so i Decided to clean my Room, and then i went acrossed the hall andwent and saw my Heart Buddy Kadience, cause she was admited here yesterday at about 5p.m., but she doing good know... :)

I Been In The Hospitial All summer

On May 24, 2011, I was Life Flitted to Primary Children's. and I was Diagnosed with Tumors In my tummy. And they did Surgery and took most of them out,but one of them are still there and i need to be on Chemo For rest of my life........ And I have been in the Hospital for 2 Months.
And I was diagnosed with Desmoid Tumors, and they don't go away, They are like cancer but, there not so, it's really hard fro the Doctors.