Wednesday, December 31, 2008

All About My Monday And After Me And My Mom Went And Got Jewels.

OK well as all you all know that today it is Monday and well today was not Clinic, cause I now I have no more clinic day's on Monday's remember. So Shore you all  don't for get all of that stuff. Any way's well so me and my mommy woke up, we were kind of late, but not that bad as we usually are well any ways. So we then both got in the shower, and we both got dressed and all ready too go too, well then I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital still, don't forget that ether. So then we left our house and went to the Julian's new office down by Trolley Square. Well and now remember theirs no more Clinic Day's on Monday's, well so now on Monday's I still only go see Julian Smith and Dr.Jeramey Hendrick's too, well nothing has changed from that. So I waited for Dr.Hendricks and Dr.Smith too, so then we started talking. My Psychologist Dr.Jeremy Hendricks, and Dr.Julian Smith was there and they were really worried about all of the stuff we have been talking about. They didn't know if it was a Behavioral thing, or a way just to cope. But we think why I do it, its just do it cause it is a good very good coping strategy, and it helps but its not what people do in life, and so we are now working on trying to find out what other coping skills well help, then they said that "If this never stops that I well have go back too the Residential Treatment Center for me to get help, But we are working it out and trying too find new coping skills, so that's a good thing. Well so ya any way's so me and Julian was not done talking, but Dr.Hendrick's was. well me and Julian we were talking and stuff like that. Anyways and then she told me that, me and her had too talk too my mom about something me and her talked about last Thursday, which is about Jewels my niece. So we did do that and it went really bad and very sad too, so know we are just going too make shore that Jewels is OK now. So we both finally got all done talking, and we went got my mom. Well see now Julian and Dr.Hendricks moved their places so they don't work at the Hospital any more. Julian works at a office building next too Trolley Square and Dr.Hendricks works at a Mentel Treatment Center called Wasatch Canyons.Well so than me and mom went and refilled all of my Medicine if it had too be refilled at Primary Childrens Hospitial and if so we went back up and picked up all of my refiled Medicine up from Primary Childrens Hospitlal. So we then we finally got all done with everything and stuff, so we then left and went finally home. I also then took my afternoon Medicine. So we then we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner, and then I started on my Homework that is going too be due in like a day or three but I'm not quit shore really, but i really didn't get it all done so I'm going too finish it tomorrow, oh and then I wacthed Hanna Montana, Grey's Anmotey and also Nip/Tuck. So I then took my shower and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep. Zzzzzz




Saturday, December 27, 2008

I'm Going Back Down Too Price For My Sweet Jewels.

Well tomorrow, me and my Family are going down to Price again, down in Carbon County, and we well be going to go see my Niece Jewels, and my wonderful hard,stressful family. It's mostly for Jewels, well cause it's Christmas and I have been missing her so,so,so much We well have Lot's of fun I hope, and I can't wait too see her cause, she misses me so much and she well be so, so, so, so happy and excited. Well we are going to wake up in the morning and me,my twin sister Jacqueline, my brother Lamar, and my mom are going to get up in the morning, we well all get dressed and get ready to leave and I well take my Medicine and all of that stuff, then we well start on the go to Price. I well be in Price till about on Sunday night. we well drive back up to Salt Lake and well spend the rest of the day home in Salt lake and I can't wait till we get back cause it's the next new episode of Hanna Montana, and I love Hanna Montana, and Miley Cyrus, so I can't wait it well be Lot's of fun. And just to let you all know I well try to Blog when I get home, but it deepens if I have some time, and how things are going, so know I'm going to get in bed so I can wake up early in the morning so I have enough time to do every thing and get everything done Monday morning, and most very, very, very unimportant my Health stuff that I have to do every morning, So ya well now I'm going to take my Medicine and stuff. well have sweet dreams and good night. Zzzzzzz. And Merry Christmas And A Happy New Year.

All About My Wonderful Christmas.

Well on Thursday wicth was Christmas, well it went really petty good, but i think I got too many Presents wicth I shouldn't of had that Many. Well this is what happened on Christmas morning me ,my sister Jacqueline, My brother Lamer, and my Mommy. Well we all first waked up and I first had to do and take all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital still, don't forget that ether. Well then me and my Family went by our Christmas bush instead of a tree, well this year we decided to have a Christmas bush instead. Well me ,my Sister,brother, and my mommy. Well we started too open our presents and this is what i got for Christmas. I got some really cute shirts,pants ,and even pajamas. And I also got the first season of Hannah Montana, the Baby Mama DVD. And I got the Cd's from The Jonas Brother's and Their New Album "A Little Bit Longer", Taylor Swift, and even David Archuleta wicth is really cool couse I get too meet him. I even got Gift cards to Jcpenny's,FYE,Old Navy and some other places too, and even some money of my very own. Well so that's all and I loved every thing I got. So well ya any ways I hope the other Heart Babies had A very wonderful and Great Christmas exspeacialy the babies that are in the Hospital now. Well Merry Christmas too everyone and A Happy New Year.

Monday, December 22, 2008

My Sweet Heart Baby Kaidence


My little Beautiful Heart Baby Kaidence has been having another hard little time in her wonderful beautiful life. Know her wonderful, beautiful new perfect heart is getting really sick again. Every one please pray for my little Heart Friend she really needs it and especially her Mom and family. Kaidence is a very strong little girl and if she can go throw all the stuff that happened in her past, and made it then she can go throw this Rejection, and I know she is a very, very, very strong little girl. And Shauntelle please tell my sweet little Kaidence that I love her very much, And that I'm very sorry. But if you really want to know that I know she well make it and she is a very, very strong little girl and i love her very much, so every one please pray for her please, and she is really sick. And I love you Kadience and your wonderful familey, and Kadeince was there for me so know I'm going too be there for you my Sweetheart Kadience too. Love you and Merry Christmas.

Gift Of A Heart


The Stephenson family is attempting to pay forward all the kindness they received last Christmas when their 10-month-old daughter received a new heart. Kaidence Stephenson, now 22 months old, was born healthy in February 2007, said her mother, Shauntelle Stephenson. But in August, the Bountiful family learned Kaidence had a serious heart problem On Dec. 23, 2007, a heart from another child was placed inside Kaidence's chest and began beating for her."Words can't express your feelings," said Mike Stephenson, her father. "Your child is going to get a chance at life, while at the same time grief washes over you, because a poor family had to lose a child so yours can live."When the couple learned a heart had been found, they immediately knelt down to pray for the family whose child died."It is a forever bittersweet feeling," said Shauntelle Stephenson."Another family chose to give to save you from the heartbreak of losing your child."That family is in the Stephensons' thoughts daily as they express gratitude for being together this Christmas."You can't beat the Christmas gift we got last year, but we get to be together this year," Mike Stephenson said.The Stephensons count their blessings as they look for ways to return random acts of kindness to neighbors and family members.They said it was the community support that helped them get through the roller coaster ride of their daughter's health problems after her heart condition was discovered. "Meals came in every other night, after we came home until March," Shauntelle Stephenson said. "Our roof was leaking, and we came home to find our neighbors had stripped it and were putting new shingles on. Packages showed up at the doorstep, and a jar full of money with the book, 'Christmas Jar' was there one night."Kaidence's heart problems began following a summer vacation in Idaho.Shauntelle Stephenson took Kaidence and her sons, McCaden, now 7, and Camden, now 4, to visit family in Idaho in July 2007. Everyone came down with a stomach virus."A few weeks later I knew something was really wrong," she said about Kaidence.Her daughter's cry was soft and weak, plus her cough did not sound normal. She took Kaidence to the doctor, who sent her to Lakeside Hospital in Bountiful. They sent her to Primary Children's Medical Center.Kaidence was diagnosed with myocarditis, an inflammation of the middle layer of the heart wall, which is usually caused by a viral infection.In October 2007, the Stephensons realized their daughter was getting worse. She was diagnosed with cardiomyopathy -- an enlarged heart -- which can be caused by myocarditis."She was throwing up all night," Shauntelle Stephenson said.Doctors admitted Kaidence back in the hospital and on Oct. 29 when it looked bleak, Primary Children's medical staff installed outside of her small body a Berlin Heart, a mechanical "bridge-to-transplant" device created for use in pediatric patients. It did the pumping for the left side of Kaidence's heart, her mother said.The hospital had to receive permission from the Food and Drug Administration to use the device for compassionate use, because the agency has not approved it.The equipment was flown in from Germany, and two doctors also traveled from two other countries to Primary Children's to train the medical staff on how to put it in and how to care for Kaidence, Shauntelle Stephenson said."Kaidence was the first one in Utah to use it," she said. The pump was to help the infant until she became healthier or another heart was found for her.Everything was going well, until the right side of her heart started failing in December.The Stephensons knew they had two options: Hook a pump to the right side of the heart or hope for a heart transplant.Now as they prepare for Christmas, the Stephensons can only talk about how grateful they are to have their only daughter home with their sons this year, even though medical bills keep piling up."We have great insurance," Shauntelle Stephenson said. "But a transplant is a financial obligation that never ends. We pay $600 a month in co-pay for her anti-rejection medication. Without insurance it would cost us $10,000 a month."Kaidence is at the age where she's not too sure what Christmas is all about, her parents said. Hanging up high in the tree is an ornament that someday will be special to her.The silver heart with a red-jeweled heart in the center is engraved with 2007 and for now, it is a special ornament for her parents.Kaidence does like the lights on the tree and enjoys candy canes. Her family is not attending as many Christmas events as they have in the past in order to protect the tiny girl from cold and flu viruses that could easily kill her.They have gone to church and school Christmas parties, because they want to show others how well she is doing.But the downside is they worry."Every time someone coughs you're looking over your shoulder, trying to keep her away," Mike Stephenson said. "But everyone else was a part of it, supporting us and encouraging us with all their prayers."Kaidence, who likes to play cars with her 4-year-old brother, has to wear a mask when she does go out. A sign on the door asks visitors to stay away if they have a cough, runny nose or have been around anyone who is ill.And there is always the worry that her body will reject the gift inside her chest."We live every moment the best we can," Mike Stephenson said. "We'll face that stuff if and when it comes. We don't focus on that. We just enjoy every second we got with her.""We've been so blessed, we can't complain," Shauntelle Stephenson said. "This girl has a purpose." And I love her so,so,so much.So every one please,please,please help here,she'spart and my life too,so please help please.

All About Today After My Heart Cath And Clinic.



Well let me tell you about today. Well now you do know that I did have too go too Clinic cause of my Heart Cath and my Echo on Friday. Ok well so theies is what happpened today. 
Well So me and my mom first woke up and me and my mom got in the shower I got  in first then she did, and well we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done then I took my Medicine wicth is my Prograf, then we went to Cardiology, so they got me ready and I got my Echo, EKG and they didn't even know what to do, well we got that part done. And then Emiley and Michelle came in told me and Mommy that she checked the results and she said that it is still leaking and there is still floewed around my Heart, and thery is more flouded. Well so she told us that every thing is the same and that me and my mommy schouldn't worrie, but you know of course we do and it's just that my Heart Cath Results was a 2+ and it's aleays been a 0-1, so i really don't konw. So then I had too see Dr.Hendrickss about my Pchcractrice Medications. Well so we then finally got done with the Hospitial Primary Children's Hospitial. And so we left the Hospitial for me too go see Julian Smith cause know her Office got mived down by Troly Square, and Dr.Hendriks is going to be working at Wasacth Canyons now. Well so me and my mommy drove down too her office  and I talked too her a lot about stuff that's been happening in my  horrible, sad Life, well then me and her talked about some other bad stuff too, stuff like that I would might have too goo back too the Residential Treatment Center too get some more help, cause I having a hard time and I'm not copping good, not at all, so I have too stop what I have been doing to myself, or its not going to be OK,not at all she said. Anyways and then she told me that, me and her had too talk too my mom about something me and her talked about last Thusdayy, which is about Jewels my niece. So we did do that and it went really bad and very sad too, so know we are just going too make shore that Jewels is OK now. Well so than me and mom went and refilled all of my Medicine, and we went back up and picked it all of my Medicine up. So we finally got all done with the Hospital. So we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner. I took my hot warm shower and also took all of my Medication, and then I checked my Blood Pressure andTemperatureand I got ready for bed and we finally went to sleep.Zzzzzz Oh and then yesterday me and my mommy went too the movies and we went and saw the movie Bolt. It was such a very,very cute movie, and Merry Christmas. 

Saturday, December 20, 2008

About When Emily Called And Told Me My Biopsy Results.

Well Emily called today and said my Biopsy Results was a 2, so my Mommy doesn't know what that really means. Because last time it was a 0 - 1, so know we have to find out by Dr. Everett on Monday, they also for got too test my Prograf level, and they also for got too give me my Prograf Medicine too. So we have too find that on Monday and also they said that there was a leakage in my Heart so we also have too do that on Monday too again another Heart Echo. Well so I really don't know what to tell you guys and my Heart Babies, I'm so sorry. So I don't really know whats going on with my Heart and the Doctor's don't know ether. So me and my Mommy are really worried about my Heart.  Megan is really so important to me and I am worried.. 

Me So Sweet And Cuite In The Hospitial When I Was In The Play Room.

Friday, December 19, 2008

All About The Rest Of My Heart Cath And I And The Docter's Don't Know If I'm In REJECTION.


And then so my mommy got on the phone with Emily and she said too my mom that well yesterday was Clinic but we didn't have too go cause of my Heart Cath, Well and then she said that we forgot about the the Heart Echo, So we did the ECHO and it look pretty bad, They said that there was a Protrusion and alot of Flowed around my Heart. But they don't know if its leaking or not. So we don't know if I'm i REJECTION or not their not shore. So i have to go back in on Monday and they have too do another Echo done and alot of blood test done too. So I'm very worried. Well and then we finally got too go home and then we had Pizza for dinner and then I got ready for bed and wactehed Hannah Montana and then blogged and then I took my Medication, and took a hot nice shower and went too sleep. Zzzzzz Well and just too let you guys know that I well try too up date my Blog tomorrow when I get My heart Cath Results. OK guys and my Heart Babies, well Merry Christmas everyone Thank you.

All About The First Part Of My Heart Cath.



OK well about my Heart Cath today whice is Friday. Well Ok so I woke up and then i got in the shower, and then took my Medication and then my Temperature,and also my blood pressure, and I took all of my Medicine except my Prograf, cause they all ways have too check my prograf level all the time.So we got at the Hospital at about 8:00a.m. Well so then my Mom cheked me in and we waited,and waited,waited,and waited,waited,and waited, and then we finally got called back. So I got every done with that part and then I went too all the way, and i smelled Strawberry. Well so my mommy waited for me for my sweet beautiful eyes too open and me for too wake up. Well so I finally woke up about 2:00p.m. Well and then the nurse gave me a fruit  punch slushy. Well and then my mom asked the nurse about my Prograf Level, and then they realized that they didn't do my Prograf Level and they even for got too give me my Prograf Medication too which was very bad. And then they told my mommy to give me my Prograf medicine so she did. So my mom called Emily the Transplant Coordinator and then.......

Sunday, December 14, 2008

All About Today Wicth Is Not A Clinic Day Cause It's Monday.



   OK well as all you all know that today it is Monday and well today was not Clinic, cause I know have no more clinic day's on Monday's remember, and how great my Echo's, have been looking  EKG, and my Blood Work also. So Shore you all  don't for get all of that stuff. Any way's well so me and my mommy woke up, we were kind of late, but not that bad as we usually are well any ways. So we then both got in the shower, and we both got dressed and all ready too go too, well then I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital still, don't forget that ether. So then we left our house and went to the Hospital Primary Children's Hospital. Well and now remember theirs no more Clinic Day's on Monday's, well so now on Monday's I still only go see Julian Smith and Dr.Jeramey Hendrick's too, well nothing has changed from that. So I waited for Dr.Hendricks and Dr.Smith too, so then we started talking. My Psychologist Dr.Jeremy Hendricks, and Dr.Julian Smith was there and they were really worried about all of the stuff we have been talking about. They didn't know if it was a Behavioral thing, or a way just to cope. But we think why I do it, its just do it cause it is a good very good coping strategy, and it helps but its not what people do in life, and so we are now working on trying to find out what other coping skills well help, then they said that "If this never stops that I well have go back too the Residential Treatment Center for me to get help, But we are working it out and trying too find new coping skills, so that's a good thing. Well so ya any way's so me and Julian was not done talking, but Dr.Hendrick's was. well me and Julian we were talking and stuff like that. So we both finally got all done talking, and we went got my mom. Well so than me and mom went and refilled all of my Medicine if it had too be refilled,and if so we went back up and picked up all of my refiled Medicine up. . So we then we finally got all done with the Hospital and stuff, so we then left the Hospital. I also then took my afternoon Medicine. So we then we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner, and then I started on my Homework that is going too be due in like a day or three but I'm not quit shore really, but i really didn't get it all done so I'm going too finish it tomorrow, oh and then I wacthed Hanna Montana and Grey's Anmotey. So I then took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep. Zzzzzz

All Of My Pump's I Was Hocked Up Too Keep Me Alive.







Saturday, December 13, 2008

All About My Last Thursday's Clinic Day.


Well this is what  happened on last Thursday, which is a Clinic day and stuff. Well So me and my mom first woke up and me and my mom got in the shower I got  in first then she did, and well we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done then I took my Medicine wicth is my Prograf, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down. So then I waited for Dr. Julian Smith, and I talked too her a lot about stuff that's been happening in my  horrible, sad Life, well then me and her talked about some other bad stuff too, stuff like that I would might have too goo back too the Residential Treatment Center too get some more help, cause I been having a hard time, and I'm not copping good, not at all, so I have too stop what I have been doing to myself, or its not going to be OK,not at all she said. Anyways and then she told me that, me and her had too talk too my mom about something and then we got done talking too my mom and then me and her talked about the stuff that her and my mom was talking about and we were talking about my sexual abuse by Tom Hovatt when i lived in Price,UT, it was very hard talking too her about that so she helped me tell her about it. So then I finally got done talking to her about it, and then she took me to my mommy, well me and my mom waited for Dr.Everett, and we had too tell her about my Blood Pressure was , well when i do an activity my blood pressure gos really low, and my heart rate stays the same. And so Dr.Everett told me that i had to wear a heart monitor for 24 Hours whicth is called a Holter Moniter. Well so than me and mom went and refilled all of my Medicine if it had too be refilled,and if so we went back up and picked up all of my refiled Medicine up. . So we then we finally got all done with the Hospital and stuff, so we then left the Hospital. I also then took my afternoon Medicine. So we then we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner, and then I started on my Homework that is going too be due in like a day or three but I'm not quit shore really, but i really didn't get it all done so I'm going too finish it tomorrow, oh and then I wacted Hanna Montana, and then I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep.Zzzzzz

Saturday, December 6, 2008

All About Today Wicth Is Not A Clinic Day And On The Weekend.




OK well as all you all know that today it is Monday and well today was not Clinic, cause I now I have no more clinic day's on Monday's remember, and how great my Echo's, have been looking  EKG, and my Blood Work also. So Shore you all  don't for get all of that stuff. Any way's well so me and my mommy woke up, we were kind of late, but not that bad as we usually are well any ways. So we then both got in the shower, and we both got dressed and all ready too go too, well then I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital still, don't forget that ether. So then we left our house and went to the Hospital Primary Children's Hospital. Well and now remember theirs no more Clinic Day's on Monday's, well so now on Monday's I still only go see Julian Smith and Dr.Jeramey Hendrick's too, well nothing has changed from that. So I waited for Dr.Hendricks and Dr.Smith too, so then we started talking. My Psychologist Dr.Jeremy Hendricks, and Dr.Julian Smith was there and they were really worried about all of the stuff we have been talking about. They didn't know if it was a Behavioral thing, or a way just to cope. But we think why I do it, its just do it cause it is a good very good coping strategy, and it helps but its not what people do in life, and so we are now working on trying to find out what other coping skills well help, then they said that "If this never stops that I well have go back too the Residential Treatment Center for me to get help, But we are working it out and trying too find new coping skills, so that's a good thing. Well so ya any way's so me and Julian was not done talking, but Dr.Hendrick's was. well me and Julian we were talking and stuff like that. So we both finally got all done talking, and we went got my mom. Well so than me and mom went and refilled all of my Medicine if it had too be refilled,and if so we went back up and picked up all of my refiled Medicine up. . So we then we finally got all done with the Hospital and stuff, so we then left the Hospital. I also then took my afternoon Medicine. So we then we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner, and then I started on my Homework that is going too be due in like a day or three but I'm not quit shore really, but i really didn't get it all done so I'm going too finish it tomorrow, oh and me and my mom saw twilight on Friday and it was a very,very good great movie every, i cant wait till the next one,well and we went . I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep.Zzzzzz

Thursday, December 4, 2008

Today Was Clinic On Thursday And Some Fun Things Too.




 
OK now this is what happened today on Thursday's Clinic Day, which is today. So me and my mommy woke up, we were late, so any ways. So I and her got in the shower, and we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done then I took my Medicine wicth is my Prograf, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down. So then I waited for Dr. Julian Smith, and I talked too her a lot about stuff that's been happening in my  horrible, sad Life, well then me and her talked about some other bad stuff too, stuff like that I would might have too goo back too the Residential Treatment Center too get some more help, cause I having a hard time and I'm not copping good, not at all, so I have too stop what I have been doing to myself, or its not going to be OK,not at all she said. Anyways and then she told me that, me and her had too talk too my mom about something me and her talked about on Monday, which is about Jewels my niece. So we did do that and it went pretty good and well, so know we are just going too make shore that Jewels is OK now. So we finally got all done with the Hospital, so we then left the Hospital. Well then me, my mommy and Jewels went too lunch at Einstein Bagels and had lunch, it was really good, I also took my Medicine. So we went home, my Grandma and Grandpa, came too visit, and then they also had too take Jewels back too Price. :( I then came onto the computer and wacthed some TV too. So I took my 6:00 pm Medicine and then I had to finished my Homework so I did it and I got it all done, because I have home school tomorrow. So finally then I finally got all of my stuff done so the rest of the night I had the time with my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner. I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and then I wacthed Miley Cyrus On Christmas At Rockefeller, Barbara Walter's 10 Most Fascinating People with Miley Cyrus, and last Grey's Anatomy. Well so and I finally got ready for bed and we finally went to sleep. Zzzzzz

Sunday, November 30, 2008

Theis Is What Happened Today Monday And Some Of The Stuff That Happened During The Weekend





Will everyone I'm so,so sorry for not blogging for the past few days. Well today it is Monday and well today was not Clinic, cause I now I have no more clinic day's on Monday's, cause how good my Heart Cath was few weeks ago on that Friday, and how great my Echo, EKG, Blood Work looked, and how great and good that I'm taking my Medicine, how great that I'm taking them on time and all of that other stuff too, so don't for get all of that. Any way's well so me and my mommy woke up, we were late, so any ways. So we got in the shower, and we both got dressed and all ready too go, I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital. So then we left our house and went to the Hospital Primary Children's Hospital. Well and now remember theirs no more Clinic Day's on Monday's, well so now on Monday's I only go see Julian Smith and Dr.Jeramey Hendrick's and I got a iTunes gift card from for doing what he told to do, and also on Thursday's, after Clinic on Thursday's. Will and just too let every one know that I'm working on my heart story. So just too let you guys know, exspecially all of my heart friends. And also Happy late Thanksgiving, and Merry Christmas also too. 

My Psychologist Dr.Jeremy Hendricks, and Dr.Julian Smith was there and they were really worried about all of the stuff we have been talking about. They didn't know if it was a Behavioral thing, or a way just to cope. But we think why I do it, its just do it cause it is a good very good coping strategy, and it helps but its not what people do in life, and so we are now working on trying to find out what other coping skills well help, then they said that "If this never stops that I well have go back too the Residential Treatment Center for me to get help, But we are working it out and trying too find new coping skills, so that's a good thing. 
Well so ya any way's so me and Julian and Dr.Hendrick's well we finally got done talking about everything, and so then me and Julian then went and went too go find my Mom. OK so then me and my mom left Primary Children's and went and had lunch, then she dropped me off at home and well i took my medicine, then came on the Computer and blogged, and then I had to finished my Homework so I didn't get it all done, but I got most of it done, but I guess I well finish the rest of It tomorrow.

 So finally then I finally got all of my stuff done so then the rest of the night I had the time with my twin sister, my big brother Lamar, and my wonderful Mom, we had some fun too, cause see know yesterday me and my mom drove down too Provo and we went and picked up my niece, well her name Jewels and she is going too be with us for a while and that's going to be so much fun, also she is coming with me too my apartments her at the Hospital so that's very cool too. So then we all had A very,very,very good wonderful dinner. I then took my wonderful nice hot bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and then I wacthed some Hannah Montana and Private Practice. Well so and I finally got ready for bed and we finally went to sleep. Zzzzzz

Friday, November 28, 2008

All About My Clinic Day And The Weekend Pluse Thanksgiving Day Too

Will everyone I'm so sorry for not blogging for the past few days. Well, just to let you all know,that we just sill have been really, really, really busy again. OK now this is what happened on Thursday's Clinic Day and well just to let you all guys know that I kinda of forgot about what every thing that happened on last Monday . So me and my mommy woke up, we were late, so any ways. So I and her got in the shower, and we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down. So then I only waited for Dr.Hendrick's instead of both of then Dr.Julian Smith and then I talked too him about a lot about stuff that's been happening in my  horrible, sad Life, well then me and Hendrick's talked about some other bad stuff too, stuff like that I would might have too goo back too the Residential Treatment Center too get some more help, anyways and then he told me that Dr.Julian Smith wasn't there because of Thanksgiving, and Thanksgiving break once again. So we finally got all done with the Hospital. So we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner. I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep.Zzzzzz Well ya anyways and also about my thanksgiving it was alot of fun cause every thing was very good, and also the other great thing is that is that I got too wacth one of my Favorite TV shows wicth is Greys Anatomy and also Hannah Montana too. Well and just to let every one know that I'm working on my Heart Story, so just too let every one know that. Happy Thanksgiving And Also Merry Christmas Too.

Friday, November 21, 2008

All About My Thursday's Clinic Day Throw Out The Weekend

Will everyone I'm so sorry for not blogging for the past few days. Well, just to let you all know,that we just sill have been really, really, really busy again. OK now this is what happened on Thursday's Clinic Day. So me and my mommy woke up, we were late, so any ways. So I and her got in the shower, and we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down. So then I waited for Dr. Julian Smith, and I talked too her a lot about stuff that's been happening in my  horrible, sad Life, well then me and her talked about some other bad stuff too, stuff like that I would might have too goo back too the Residential Treatment Center too get some more help, anyways and then she told me that well next week she won't be there at the hospital because of the Thanksgiving break, well then she said that I'm only going too see Dr.Hendricks, Jeramey Hendricks, so I'm only going too see Hendricks instead of both of them.. Then we finally got done talking and so then me and mom waited for Dr. Everett, we had too see Dr.Noland instead, and that sucks cause my mom had too talk too her about some stuff. And then he came in and we all talked about everything, and my Medicine, we got it all organized them with the Doctor, So me and my mom told Dr.Norland about my hand cause I guess the doctors hurtted all of my nerves in my right hand, but it was a big mistake, well so then we finally got out of Cardiology, then I finally  got too see all of my Heart babies first Kadence, then Daxton and Teagon, and last Gracie but now she's in the hospital she got admitted on Thursday after noon when all of us had our clinic apartments me and my heart buddy's. So me and my Mommy went up stars too the third floor and went too go see some of my best friend nurse's, and also Annette she is a nurse too up stars too, but to me she's a  very trusting friend kinda like my second mom, that's how much I love her. Well so than me and mom went and refilled all of my Medicine, and we went back up and picked it all of my Medicine up. So we finally got all done with the Hospital. So we went home and spent the rest of the day at home with my wonderful family, my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner. I took my bath and also took all of my Medication, and then I checked my Blood Pressure andTemperatureand I got ready for bed and we finally went to sleep.Zzzzzz 

Monday, November 17, 2008

All About My Monday After The Heart Cath On Friday

Well today it is Monday and well today was not Clinic, cause I now I have no more clinic day's on Monday's, cause how good my Heart Cath was on Friday, and how great my Echo, EKG, Blood Work looked, and how great and good that I'm taking my Medicine, how great that I'm taking them on time and all of that other stuff too. Any way's well so me and my mommy woke up, we were late, so any ways. So we got in the shower, and we both got dressed and all ready too go, I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital. So then we left our house and went to the Hospital Primary Children's Hospital. Well and now remember theirs no more Clinic Day's on Monday's, well so now on Monday's I only go see Julian Smith and Dr.Jeramey Hendrick's, and also on Thursday's, after Clinic on Thursday's. My Psychologist Dr.JeremyHendricks, and Dr.Julian Smith was there and they were really worried about all of the stuff we have been talking about. They didn't know if it was a Behavioral thing, or a way just to cope. But we think why I do it, its just a good coping strategy, and it helps but its not what people do in life, and so we are now working on trying to find out what other coping skills well help, then they said that "If this never stops that I well have go back too the ResidentialTreatment Center for me to get help, But we are working it out and trying too find new coping skills, so that's a good thing. Well so ya any way's so me and Julian and Dr.Hendrick's well we finally got done talking about everything, and so then me and Julian then went and went too go find my Mom. OK so then me and my mom left Primary Children's and went and had lunch, then she dropped me off at home and well i took my medicine, then came on the Computer and blogged, then I had Occupational Therapy, and then I had to finished my Homework so I did it and I got it all done. So finally then I finally got all of my stuff done so the rest of the night I had the time with my twin sister, my big brother Lamar, and my wonderful Mom, so we had dinner. I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and then I wacthed Hannah Montana and Grey's Anatomy. Well so and I finally got ready for bed and we finally went to sleep. Zzzzzz

Saturday, November 15, 2008

The New Plan For Now

Well now the new plan so far is that we go to Clinic every Thursday's no more Monday's, so I only have too go too Clinic once a week not twice a week any more. So on my Clinic day's which is now only Thursday's, so on Thursday's first I check-in and then I get my blood work, Echo, EKG and then my check-up all done and all of that other stuff done too. So and then I go and see Julian Smith, but I still go too the Hospital on Monday's just too go see Julian Smith and Dr. Jeramey Hendricks, cause I have too see them twice a week. And then me and my mom go get my Medicine from the Pharmacy every Thursday, now I only have Heart Cath's every mounth instead of every Friday. Also I still have Physical Therapy, and Occupational Therapy, oh and also I still have home school twice a week. I also take my Medicine every Morning and Night. This plane is going too be the Plan for A while, well that's all I know for Know, but when I get new thing's that I have too do for my new plan I well just add it. OK well that's all I think I know for now.

My Heart Cath Form Yesterday

Well I had my Heart Cath yesterday, and It went pretty good, well I went in at 11:00 in the morning. And then Again I had my bad episode again, I was asleep for a very long, long, long , long, long time, but the very great, great, great, great, great thing was I didn't have to stay over night at the Hospital, well I woke up about 6:30 at night and then we had to wait for the Cardiologist, too come talk to us about the Heart Cath, and about the X- Ray they had too do, well I guess they did the X- Ray while i was having my bad sleeping Episode. Well any way's we waited, and waited, and waited, and then finally my Cardiologist came in who withe is Dr.Everett. And well she came in and told us that the Heart Cath looked great and that we had too only go too Clinic once a week, instead of twice a week, and my mom was kind of worried so she asked why, and Dr.Everett said because Megan has done so great and how good her Heart Cath's, and Echo's look. So my mom said well that's good. So then we left the Heat Cath Lab, So then well it was so cool that well me and my mom went to Toco Bell and got us A toco, then we went too basket Robbin's an got us each a scoop of ice cream, and then we buyed us a ice cream cake and we wrote on the cake Megan's Special Day. Well so then we got home, and I finished eating my toco and then I took a hot nice bath, and I went in and wacthed Gery's Anatomy, then went on the computer, and then I also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed I been having alot of pain in my Chest for some wired reason and my hand has been num sence the Heart Cath which was yesterday well and I finally went to sleep. Zzzzzzz   

Thursday, November 13, 2008

I'm Really Sick And We Had To Have Clinic Today

Well today I was not supposed to go too clinic, cause of that i have a heart cath tomorrow , well anyways i have kind of been sick like last night i was so pal that you actually couldn't see my lips, and stuff like that, under my eyes were so dark its like what i looked like when i as in the hospital waiting for my new heart. so my mom called the doctor yesterday and she told us to come in tomorrow and we well just make it like a regular Thursday's Clinic Day. So me and my mommy woke up, we were late, so any ways. So I and her got in the shower, and we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done, then we went to Cardiology, so they got me ready and I got my Echo and EKG done. So they checked every thing, and they said that every thing looks pretty good, but they think it mite be a sign of Rejection. OK and well my Heart Cath is tomorrow which is a Friday, So I'm the third case in, which is kind of hard on me, cause usually I don't wake up for a very, very, very, very long time, and that scares Me and my mom, even the Doctor's too. Cause they don't know if it's my Heart or me just copping the I cope, know see most of the times when I have Heart Cath's I usually have too stay over night at the Hospital so I really don't know. So ya anyways I have been kind of sick and still sick, so my mom is very worried. So then I and my mom finally got done and went home, and I had Physical therapy. And then me, my mom, my sister Jacqueline, and my big brother Lamar, well we went on a horse carriage down town it was fun but we all got very cold. and then we got home and ate dinner and then i got ready for my cath, i got all my things i need to take with me. So i got that all done and wacth Grey"s Anatomy it's one of my favorite shows. well so i took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep. Zzzzzzz    

Wednesday, November 12, 2008

My Sweet Heart Baby Kaidence





















My little Beautiful Heart Baby Kaidence has been having another hard little time in her wonderful beautiful life. Know her wonderful, beautiful new perfect heart is in Rejection. Every one please pray for my little Heart Friend she really needs it and especially her Mom and family. Kaidence is a very strong little girl and if she can go throw all the stuff that happened in her past, and made it then she can go throw this Rejection, and I know she is a very, very, very strong little girl. And Shauntelle please tell my sweet little Kaidence that I love her very much, And that I'm very sorry. But if you really want to know that I know she well make it and she is a very, very strong little girl and i love her very much, so every one please pray for her please, and she is really sick.


Tuesday, November 11, 2008

My Heart Babies












                               














 

Monday, November 10, 2008

Today Was Clinic On Monday

                                                                 This Is My Heart Buddy
                                                                             DAXTON
                                                        
Today was Monday, which is A Clinic Day. So me and my mommy woke up, we were late, so any ways. So we got in the shower, and we both got dressed and all ready too go, I took all my Medicine, checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down. So then I waited for Dr.Julian Smith and Dr.Jeremy Hendricks, and talked to them about A lot of stuff that's been happening in my Life, and then we got done talking and so then me and mom waited for Dr.Norland. And then he came in and we all talked about everything, and my Medicine, we got it all organized them with the Doctor. And then he checked me like listened to my Heart and stuff like that, so then I told him about whats been happening with my shoulder. And so he's kind of worried about that. So he just said that we well keep a eye on it. So OK and my Heart Cath is this coming Friday, So I'm the third case, which is kind of hard on me, cause usually I don't wake up for a very, very, very, very long time, and that scares Me and my mom, even the Doctor's too. Cause they don't know if it's my Heart or me just copping the I cope, know see most of the times when I have Heart Cath's I usually have too stay over night at the Hospital so I really don't know. Anyways so we finally got all done with the Hospital, and we did stop back in Clinic and went and saw on of my Heart Buddy's, his name is Daxton, and he's such a sweetheart. So we went home and spent the rest of the day at home with my wonderful family, my twin sister Jacqueline, my big brother Lamar, and my wonderful Mom, so we had dinner, I finished my Homework, cause I have Home School Tomorrow and the next day too. So then I got too Watch Hannah Montana, and a movie too. I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep. Zzzzzzz

Saturday, November 8, 2008

For What Is Happing Tomorrow Which Is A Sunday


                                                            This Is Me And Jewels

Well tomorrow, me and my Family are going down to Price again, down in Carbon County, and we well be going to go see  my Niece Jewels, and my wonderful hard,stressful family. It's mostly for Jewels, it's her wonderful Birthday Party and she's turning Three years old. We well have Lot's of fun I hope, and have some very mummy, mummy wonderful cake, I can't wait too see her cause, she misses me so much and she well be so, so, so, so happy and excited. Well we are going to wake up in the morning and me,my twin sister Jacqueline, my brother Lamar, and my mom are  going to get up in the morning, we well all get dressed and get ready to leave and I well take my Medicine and all of that stuff, then we well start on the go to Price. I well be in Price till about late afternoon, we well drive back up to Salt Lake and well spend the rest of the day home in Salt lake and I can't wait till we get back cause it's the next new episode of Hanna Montana, and I love Hanna Montana, and Miley Cyrus, so I can't wait it well be Lot's of fun. And just to let you all know I well try to Blog when I get home, but it deepens if I have some time, and how things are going, so know I'm going to get in bed so I can wake up early in the morning so I have enough time to do every thing and get everything done Monday morning, and most very, very, very unimportant my Health stuff that I have to do every morning, So ya well now I'm going to take my Medicine and stuff. well have sweet dreams and good night. Zzzzzzz

                                                                                                          

Friday, November 7, 2008

Me When I Was In The Hospitial

This Is What Has Been Going On For Last Few Day's

Will everyone I'm so sorry for not blogging for the past few days. Well, just to let you all know,that we just sill have been really, really, really busy again, and I got my new glasses well I think most of you guys already know, well I have been wearing sense I got them, and I look so cute in them, and guess what I look adorable in them well It's my first time wearing glasses, and hay It's not as bad then I thought It was. Well, its kind of fun, cause you It's a new thing too me. Well, one pear is like a pretty dark brown color, and my other pear is pink and gray, my mom picked those ones out, and I look so, so, so, so, so, so, very, very, very, very cute in both pear's of my glasses. OK now I Well tell you guys about Thursday's appointment. OK now this is what happened on Thursday's Clinic Day. So me and my mommy woke up, we were late, so any ways. So I and her got in the shower, and we both got dressed and all ready too go, I took all my Medicine, and checked my Blood Pressure, and my Temperature, and wrote it down in my Heart, and Medicine Check Book, that I have been have too use sense I first got home from the Hospital, I well have too write in that Medicine Book for a very, very long time. So then we left our house and went to the Hospital Primary Children's Hospital. I first got my blood work done, then we went to Cardiology, so they got me ready and I got my Echo, EKG and all of that other stuff down. So then I waited for Dr. Julian Smith, and I talked too her a lot about stuff that's been happening in my  horrible, sad Life, and then we got done talking and so then me and mom waited for Dr. Everett. And then she came in and we all talked about everything, and my Medicine, we got it all organized them with the Doctor, oh and just to let you know that next Friday is my next Heart Cath. So then we got all done with Clinic, finally, and then me and my mommy then went to the Pharmacy and refilled all of my Medicine, and then we went up to the Third Floor and saw Annette, a nurse that is really close to me, and I love her so much, she is a very special person to me well  any ways. So we finally got all done with the Hospital. So we went home and spent the rest of the day at home with my wonderful family, my twin sister Jacqueline, my big brother Lamar, and my wonderful Mom, so we had dinner. I took my bath and also took all of my Medication, and then I checked my Blood Pressure and Temperature, and I got ready for bed and we finally went to sleep. Zzzzzzz