Monday, September 15, 2008
Getting Ready To Leave The Hospitial
Well today the doctor's came in and said Megan you are leaving the Hospital to go to the Ronald House on Wednesday. And I was so proud, well then the Doctors said now you are going to be on a lot of Medicine and you have to make shore you take on time or you well get really sick and you might end up in PICU. So they gave me this binder that shows my times when to take my Medicine, and the Doctor's said I well be going home with my PIC LINE cause I had to be on some IV Medication, but then they changed their mind about that. It's really frustrating cause they keep changing every thing, but they told me not to be worried about it. But, I still worried alot it's just that's the kind of person I'am. Well Holly which is the Child Specialist is helping me make a Scedurale for when I get home, Cause It's for Medicines, OT, PT, Home School, and Home Health. And It really sucks cause I have to go home with a Feeding Tube, which is going to be really hard, cause the way my Feeds are is really confusing. But the good thing is that I know how to work the Feeding Pump so might not be too bad. And I'm going to go home with a Wheel Chair too. And lot's of other things too, Well on Friday I had a Heart Cath, and it didn't go good It was really scary cause I wouldn't wake up and I guess I was not Breathing and some other stuff too, but know I'm ok. And one More good news is Daxton got his Breathing Tube out, I'm so happy for him. Well I have to go and I well Blog later, I might not Blog till I leave the Hospital cause I'm going to be really busy, so I well Blog when I get every thing done and go to the Ronald House. So ya see ya later.
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5 comments:
Megan,
Just wanted you to know how much I think your ROCK! You are an incredible young woman and an inspriation to so many.
I am hopeful that your road to recovery will smooth out and before you know it your feeding tube will be history.
Heart Hugs,
Carolyn Quigley
President, IHH
You go girl!! I am so happy for you, it has been an honor to meet you and your family. I pray that you continue to do well. Much love, Hilary Cook-Daxton's mommy
That must all be overwhelming for you to think of, Megan. But you sound like a very bright girl who has a great future ahead!!
I'm so happy you received your new heart. That is a miracle that I'm sure you are very grateful for, and will become even more in awe of as the years go by.
Good luck! Hope you feel better each day!
- Gracey's Aunt :)
Megan,
I found your blog tonight right when I need to hear some positve news. My son Kyle is 13 and was born with congenital heart disease. He had numerous close calls as a baby and his 1st open heart surgery before he was one year old. We knew he would need another when he got older but it was suppose to be a much easier surgery. The time has come and his heart has gotten weak. Unfortunately it isn't going to be as easy as they thought. We are waiting to go to St. Louis sometime in the next few weeks to meet with the transplant doctor. He will let us know if there is any thing else they can do or if Kyle needs a transplant. Hearing your positive attitude and how well you are doing helps. Kyle doesn't want to talk about it much yet but I maybe someday he can talk to you. You are in my prayers.
I am so glad I found your blog.
*Hi Megan, my name is Gabby. I'm 17. I'm so happy you got your heart! I spent a month in PCMC. July 27-Aug 22 '08. So I know a little of what you're going through \. Nothings wrong with my heart. I went in here in Evanston for a simle overnight stomach surgery on July 17 and came close to not making it more then once... Pacreatiatist. The last time i was in PCMC was actually right after you got your heart and i was in the room next to you. Well I'm glad you're doing well. Check out my care page. GabbysStory.* ~Gabby~
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