Monday, September 15, 2008

Getting Ready To Leave The Hospitial

Well today the doctor's came in and said Megan you are leaving the Hospital to go to the Ronald House on Wednesday. And I was so proud, well then the Doctors said now you are going to be on a lot of Medicine and you have to make shore you take on time or you well get really sick and you might end up in PICU. So they gave me this binder that shows my times when to take my Medicine, and the Doctor's said I well be going home with my PIC LINE cause I had to be on some IV Medication, but then they changed their mind about that. It's really frustrating cause they keep changing every thing, but they told me not to be worried about it. But, I still worried alot it's just that's the kind of person I'am. Well Holly which is the Child Specialist is helping me make a Scedurale for when I get home, Cause It's for Medicines, OT, PT, Home School, and Home Health. And It really sucks cause I have to go home with a Feeding Tube, which is going to be really hard, cause the way my Feeds are is really confusing. But the good thing is that I know how to work the Feeding Pump so might not be too bad. And I'm going to go home with a Wheel Chair too. And lot's of other things too, Well on Friday I had a Heart Cath, and it didn't go good It was really scary cause I wouldn't wake up and I guess I was not Breathing and some other stuff too, but know I'm ok. And one More good news is Daxton got his Breathing Tube out, I'm so happy for him. Well I have to go and I well Blog later, I might not Blog till I leave the Hospital cause I'm going to be really busy, so I well Blog when I get every thing done and go to the Ronald House. So ya see ya later.

I'm Going Home To The Ronald House

Well I'm so sorry I haven't Blogged for a while, it's just I have been getting ready too go home at the Ronald House. Cause as you know I got my new Heart. Well now I have to go to PT, which I hate, So I well Blog latter see ya.

Friday, September 12, 2008

Daxton's New Heart

                                                    Daxton's New Heart Transplant
        

Today is such a great day for one family and a heartbreaking day for another. I received a phone call about 2:35 this morning to tell me that Daxton has a heart. Unfortunately my phone ringer was off and I did not know. So I saw the message first thing this morning and was able to run up and see Daxton. I am heading up again in a few to sit in the waiting room with his family. I am so grateful for this beautiful miracle. Daxton melts my heart and he has the sweetest family. We are so happy for you DAXTON!!! We will continue our prayers not only for you and your family but for the family who's heart aches to hold their little angel. Yes he finally got his new heart.

Sunday, September 7, 2008

The "Page"

Megan's Heart transplant pager went off about 10:30 a.m. on September 2, 2008. Emily the transplant coordinator asked me if they could tell her before I got back to the hospital to begin the blood workup... How exciting,,, Driving to the clinic with the emegancy flashers on... Making sure we had our T-Shirts made,(Yellow with the words Be a donor, give someone your heart...on the back a picture of her and the words *Like me*) Dr. Kourtes went to harvest the new heart
Megan wanted to spend most of her time holding Teagan and watching his smile... they bonded very deeply..Finally, they took her to the OR at 7:oo p.m Dr. Kaza was the surgeon that performed the transplant....Megan went to sleep at 7:20 and the first chest incision was at 8:10 the new heart began to beat at 9:55 p.m. Megan was in the PICU and I got to see her at 1:30 a.m September 3, 2008... Up hill from then on..... to be continued tomorrow and up to date. Her mom Paula